| | Joined: May 2009 Posts: 1,413 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,413 Likes: 1 | YEAH!!!!! Well, today's treatment knocked me flat on my rear end. I came home and slept for two hours and woke up and my tongue felt like it was on fire. What the ?? I know that is what they are aiming at, but my word.
I do have to say I felt good yesterday and actually was able to go do some Christmas shopping yesterday evening. I only lasted about 30 minutes and then we had to come home, but I did get some done. Now I just have to get the energy to wrap those things. At least the kids in the family are going to get something, but I think the adults are out of luck this year.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | sorry to hear of the "fire tongue" although im glad u felt good enough yesterday to shop. we havent shopped at all yet. money is tight!!! i am afraid to get him out around all the people, then stand in the long lines...well thats another story. and it just doesnt feel right shopping without him.
enjoy ur weekend off from treatment! 4 more to go!!!!
teresa
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Well done Angelia, you sound like you have a great attitude. Hang in there and keep on.
Good luck,
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: May 2007 Posts: 132 | Hi Angelia,
Mark up those milestones, and enjoy your Christmas with the kids. I'm sure just seeing you smile will be enough of a present for the adults in your life! The kids on the other hand will light up your heart when they get their Christmas presents. Whatever your plans are for Christmas I hope that you have a memorable one.
Sue
55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Hi Angelia,
Wow, you are doing great!Hey, all those adults should be taking care of you!The big gift is you getting better so save some paper to wrap around your self!!!!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: May 2009 Posts: 1,413 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,413 Likes: 1 | OMG! I feel like a train wreck today. I used my tube for the first time today and that Jevity did not stay down. I just want to scream. My throat hurts, my tongue hurts, everything hurts. I just needed to whine a bit. Thanks.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | angelia,
whine away! one thing ive come to realize on this site is that everyone has been there or understands what u are going thru, whether it is treatment, pains or emotions. i would be in serious trouble if this site had a "no whinners policy" lol!
hang in there!
my hubby, andy, is right there with u. when u list ur pains and feelings, its like listening to him all over again. i just wish i could get him to get on here and see all the support he could get from this site.
he knows ur name. when he has a pain, i tell him thats normal...ur right on track...angelia said the same thing today!!
teresa
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: May 2009 Posts: 1,413 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,413 Likes: 1 | LOL, I got a whole week off of treatments, because the side-effects came on over night. I couldn't lie down without choking. It is getting better now, but I have stubborn sore on the left side, that is rubbing against my teeth. I try not to talk so it doesn't rub. Makes my family happy. LOL
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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