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Malka #107594 11-22-2009 05:23 PM
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Jim, I agree. The kids will be a great source of distraction and hopefully will give you a few laughs. I hope your pain is under control and they are staying on top of that.
I always looked forward to reading your posts, your wit intertwined with your bits of advice always gave me a good laugh.
Thank you! Sorry you have to go through this after all you've been through.
Nancy


caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
EricS #107637 11-23-2009 05:06 PM
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Well, tomorrow is the day for the MRI and hopefully to ASK a lot of questions and get some answers, My youngest son is going with me and if nothing erlse, LOL , his size should raise some awareness with these Drs. This is the one that is into World's strongest Mans Competions. My hardest job lately has been getting food into this large cavity called a mouth and then swallowing it with plenty of water and soft butter. I am back down to the high 150s in weight and do my best to keep food going in to raise the weight. I am sorry I don't post much, but when I sit, for some reason the skin tightens over my eyes and pulls them closed. Next thing I know the time has changed. I hope everyone here feels better and that everyone of us whip this garbage. Keep em guessing will ya?? {^^}


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #107641 11-23-2009 05:56 PM
Joined: Feb 2007
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Hi Jim- No worries. Post when you feel up to it. We are all thinking of you and sending you healing peaceful thoughts. Wish you weren't in any pain at all.

LOVE Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
EzJim #107649 11-23-2009 06:45 PM
Joined: Mar 2008
Posts: 3,082
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Don't keep us in Suspense EZJim, what did your Champion Son wring out of the doctors? I am hoping and praying that it is POSITIVE. You are a real inspiration to all of us here at OCF.
I may not be as pretty as your Angels (Okay, I am definitely not as pretty as your Angels), but I do care about you brother.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #107654 11-23-2009 07:33 PM
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Posts: 1,301
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Thinking about you Jim and hoping all goes well with the MRI.
Don't know about the pretty Charm but love to you Jim from
Angel Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #107664 11-23-2009 10:03 PM
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Jim, you will be tops on my prayer list as you go for your MRI tomorrow. Don't worry about not posting. We understand. It's just that we love you and worry about you. Maybe you could teach that big strong son of yours to post for you! Hang in there, Big Guy. XOXOX


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
August #107672 11-24-2009 01:33 AM
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Jim, still praying for you. I hope the MRI went well and your son was able to get info from the Drs.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #107677 11-24-2009 04:55 AM
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Thinking of you Jim.

Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
EzJim #107690 11-24-2009 08:44 AM
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*sending up a whole heap of prayers for you Jim*

I sure hope you're getting some answers.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
Joined: Dec 2008
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Hi Jim.....hope all went well today. Sounds like you got some answers and if you didn't was your son going to run intervention? lol

You just relax and post when you can. We'll always be here

xoxo

Last edited by suzanne98; 11-24-2009 06:27 PM.

Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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