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suzanne98 #107731 11-24-2009 09:31 PM
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No mersa. I somehow picked up a staff infection. My jaw hurts so much. Ive taken alot of pain meds and it still aches.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #107732 11-24-2009 09:37 PM
Joined: May 2007
Posts: 666
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That sucks! Hope this responds well to the antibiotics.

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #107761 11-25-2009 02:15 PM
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At least it's not mersa, right? Sounds like you won't have to go to the hospital for the staff infection. We know we're all cheering for you!! But man....I wish that pain would go away for you soon:)

((((HUGS))))


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #108263 12-04-2009 06:14 PM
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Posts: 5,260
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Geez Christine, Why is it you have to suffer so much ? You are such a special lady and so caring about everyone. I am on here looking for news of you and how you are doing. Maybe I will give you a call tomorrow afternoon early. Your forever Buddy,,,, Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #108276 12-04-2009 10:45 PM
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Hi, Christine -
I've been following your progress. You really are a special person - I'd have you in my corner any day! Hope your infection clears up soon - staph infections are no fun, either.
Hang in there.
Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #108454 12-08-2009 01:27 PM
Joined: Aug 2008
Posts: 238
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Christine,

Hope you're rid of your staph infection now and continuing on with your healing. I think of you often and hope you are doing well - you've spread so much good will to everyone here. You have LOTS of fans here so absorb all the good vibes we are sending your way and let us know how you're doing soon.

Take care - Nancy T


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
Nancy T #108499 12-09-2009 07:17 AM
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Im still amazed at how many people check up on me. Thank you!!!

A few days ago I had problems with my peg tube getting clogged in the middle of the night. Made no sense to me at all since I had just flushed it a couple hours earlier and was doing my night feeding. Went to my gastro doc, the assistant couldnt get it unclogged either. Finally the doc came in and worked it open. I flush it several times per day and at least once during the night. For anyone who has this problem with their tube....if it was not able to get cleared, another one would have had to be inserted surgically.

I also had a problem with my neck wound bleeding quite a bit for a few hours. Thankfully it subsided so I didnt have to go to the ER at night in a snowstorm.

As of today, Im doing ok. My progress is slow but I do see the swelling gradually going down. My plastic surgeon said it will take a year for everything to heal.

Thanks for all the emotional support.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #108501 12-09-2009 07:33 AM
Joined: Mar 2008
Posts: 3,082
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Hi Christine

Glad you posted this here as I had read your mini blog entry on the OCF CancerBlog forum but I try not to hit reply as that forum is supposed to be read only according to OCF.
Sorry to hear about the PEG tube clogging. As you know, I hate them so I was not surprised, although disappointed that you had even more trouble.
Hope the Holidays don't get too depressing - you certainly are appreciated here at OCF.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #108526 12-09-2009 05:30 PM
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Posts: 1,004
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What a pain Christine!! Can't you get a break? You are so sweet...you know we all love you here and we are always checking up on you. What are your plans for the holidays? You are welcome to come to my house..I can whip up some Ensure on ice!! (I make it really good...with vodka:)

xoxo


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #108536 12-09-2009 06:58 PM
Joined: Jun 2007
Posts: 10,507
Likes: 2
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Charm... I had a peg tube for a year and a half without any problems. This time around its not so simple. Im already on my second peg tube. Since I have trismus, I was awake for the surgery. I was given morphine and had my 50mg patch on. Its unbelievable that I had to suffer in agony while a new tube was placed. The first tube somehow got lodged in my abdominal wall.

Although this year is different without my son here, it will be ok. I must make the best of things. Hopefully, you will be able to keep your chin up during the holiday season. Be careful too, you dont want eggnog to clog up your tube smile LOL

Suzanne.... YOU are the sweetie!!!! I got the nicest card from your sister while I was in the hospital. For Christmas I always stay home. My daughter is with me so it will be ok. I miss my son Travis very much. We always went to a special tree farm and Travis would cut down the tree. I had to start a new tradition this year, we decorated a cute little potted norfolk pine tree.


Im not the only one who must start the holiday season off differently this year. Travis is only gone for a short time. Blessings to all those families who are going thru this season without a special loved one by their side.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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