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mhupe #102329 08-25-2009 03:45 PM
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Can she receive flowers?

Sandyst


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

Nancy T #102330 08-25-2009 03:50 PM
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She is sedated until Thursday. When they wake her up, I'll ask Travis if she can receive flowers.

Cecilia just sent me a message about flowers, wondering if interested parties could pitch in through a pay pal account to send a nice a bouquet. I have no idea how to do that...if anyone has ideas on that/or interest in participating in a group bouquet...post here or on her Facebook Fan Club page and we'll see if we can figure something out.


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102331 08-25-2009 04:28 PM
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I'm going to the hospital on Saturday. I'll let everyone know how she is doing when I see her. That's the plan anyway. I think I'll call Travis before I leave and make sure she's up to it...


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Nancy T #102344 08-25-2009 05:39 PM
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Thanks for the address sue. Is there an update for today??


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
suzanne98 #102359 08-25-2009 08:41 PM
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That is so nice of you Suzanne to go visit her! Please give her my best!!!


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Susan Lauria #102372 08-26-2009 06:43 AM
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On that note about the flowers...I would definitely like to contribute so please tell us how. I think that's a fantastic idea Margaret.

I also would like to propose that we, with Brian's permission, set up a fund within the OFC that we can make a specific donation to, that will send flowers to every OFC poster when they have to have surgery and I will make the first donation to get it started.



David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #102380 08-26-2009 07:36 AM
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That's a great idea. I would like to donate also.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Nancy T #102382 08-26-2009 07:47 AM
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Thank you Margaret. I have been checking and I am happy to see that all went well with the surgery. Looking forward to hearing from Travis.


Donna

Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
suemarie #102383 08-26-2009 07:48 AM
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Just looked at the paypal website and it looks like I should be able to send someone money to assist with the purchase of flowers.

You have to select "send money" and then select the "personal" option (as opposed to the purchase option). All I need by the looks of it is an e mail address of someone who will be coordinating the flower purchase.

Would you be interested in purchasing the group flowers Suzanne, and if so I would need your e mail address to send the funds.

It looks pretty straight forward through PayPal.

Let me know.

Donna




Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #102396 08-26-2009 02:34 PM
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Hi, Margaret and I thought we could send flowers via Paypal. I have a paypal account so if needed we could use mine. i found a site that accepted paypal as payment for flowers and delivered in Allentown.
I didn't think flowers were accepted in some parts of hospitals. I know that Martin wasn't allowed them as he was in the high dependancy ward. I thought maybe we can get flowers for when she comes home.
I was thinking of organising it with Margaret's help on Christine's facebook fan page, but I can link to both sites.
With $1 each from her facebook friends and OCF friends, we could get something really pretty.
I am happy to organise if you want.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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