| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Just a reminder to everyone if you are ever interested in passing out OCF information to area hosptials, cancer centers, support groups, dental offices, etc. Please let me know. We can always use your help in spreading the word about oral cancer and the OCF. Just pm me with your mailing information!
Thanks to everyone for all of your help!!
Have a great weekend!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I just put all my remaining What You Need to Know brochures out at Moffitt this past Tuesday so I could use some more. I hope the next printing shares the Award.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi David,
I will be sure to get those out to you asap. Can you send me your mailing address in a pm? I am sure Brian will be putting the award on everythng we have!!!!!
Thanks so much!!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Hey Susan, I could use some more of the postcard sized info cards. I still have brochures....also wanted to tell you a story about taking my grandson to the dentist. This was a new dentist, someone who could give him some laughing gas (Matt is 4 years old) so of course I took a handful of info in to the office. I went to sit down with my husband and grandson and hubby nudges me in the ribs and says "maybe you didn't need to bring that here"...on the wall was a homemade poster with cut out pics of famous persons with oral cancer urging people to have a screening. 
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Cheryl, I will be sure and get those out to you!
Thanks for the story! That is a good way of getting the point across for sure!!
Take care!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Susan, new to OCF and more than willing to spread the word. Not sure what you have for material but I would love to distribute brochures, postcards, etc. Let me know the process. Also are there any walks, bike rides, marathons etc that are planned for OC? There's so much out there for breast cancer but I've never seen anything for oral cancer. of course I wasn't looking for it until recently
Nancy
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Nancy,
Thank you we would love your help in passing out information. I will get a package out to you asap. We are trying to get our information into the hands of organizations and people who need our help or who just don't know of OCF. So dental offices, hospitals, cancer centers, social service organizations, oral surgeons, etc.
I don't know where you are in Mass, but we are having our third Walk the rock. It is organized by one of our volunteers, Laureen Brady. She is finalizing the date, but it sounds like it would be October 4th in the Boston area. I will pm you her email address and you can connect with her I am sure she could use volunteers. She runs a very successful event each year. Also, if you can pm me your home address I will mail out information to you
Thank you for wanting to help and make a difference. I know how busy your schedule must be but it only takes a little time to make a difference!
Take care
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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