| Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I was an Occult at first but the docs at Moffitt said that they were determined to find it so they put me under and started taking biopsies of all suspected areas given my medical history and my life's history for lack of a better phrase. I fully expected my tonsils to be removed but luckily for me they found my Primary at BOT and the doc said it was so small he thought he got it all with the biopsy so they stop.
They had told me that if they couldn't find my Primary that the radiation field would have to be increased to cover all suspected areas and since I was receiving the maximum radiation regardless, 72 gys, that it could potentially mean less delivered to the known areas of cancer.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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