If your insurance won't cover VHC (It's for oral ingestion, not PEG, so some don't cover it), I recommend Nutren 2.0 (500 cal/can) -- You can also drink it, unlike some of the PEG foods -- I don't like the taste but found adding two tbsp of Nestles Nesquik makes it taste good and adds 60 cal/serving to bring it up to VHC.

I'm having troubles with T, L and X on a regular basis and different combos if my mouth is too wet or too dry. I find myself generally more understandable on the phone than in person; I presume that's because folks are confused by my somewhat different non-verbal signals -- Sounds coming from my throat may not be reflected on my lips.

Get a feeding pump, if you don't already have one -- You can run it at night when you are sleeping to get more PEG time (AKA multi-tasking!). If insurance doesn't cover it, look on EBay for Kangaroo Pump and an IV stand.

You WILL have troubles with swallowing issues with radiation, so be prepared for that -- Best advice is to keep swallowing as much as possible, even just water, and also exercise your mouth range by opening it as wide as possible as often as possible -- Try now and see how many stacked fingers you can fit in to gauge progress or lack of it.

I'd also suggest that you teach your family that it's better to say the wrong thing than to ignore the victim!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.