I introduced myself in September prior to my surgery, but should probably re-introduce myself. I just had surgery to remove 80% of my tongue, received a flap from the pectoral muscles on my right side, had my mandible removed and replaced with the tibula from my right leg. I have a PEG and just started speach and swallowing therapy. So far I am able to swallow liquids the consitency of honey, but I am very encouraged by reading the posts from others who relearned to swallow and hopeful that I will someday enjoy some foods. Face to face at least some people can converse with me. I have trouble with G, K, D and I'm sure that we will find more. If my speach is not greatly improved, I will not be able to return to my management position and will have to figure out some other way to support myself. I do not have to make that decision until next spring though.

I would really like to hear from others who have the flap. I am not gaining weight and have dropped below 100 lbs now. I would love some suggestions on how to put more food in PEG. I am asking the Dr. for a higher calorie food. My next step in the treatement process is radiation. I am concerned about the effects this will have on the flap and my swallowing ability. One of my margins was very close though and the doctors say that radiation is the best option to keep this cancer from returning.

I am alone in this battle - my family is doing the best they can to support me, but they are all scared and don't really know what to do or say. I would appreciate some input from people who have had these same or similar experiences. Thanks.