| Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Don't forget to send the patient to Physical Therapy after ND. Also PT help with lymph drainage and trismus issues as results of radiation.
My biggest problem was and is communication trying to get test results. Doctors won't do email because they'd get 2000 a day. Trying to get call back from the nurse or secretary doesn't work. Sometimes I can't even get through to the dept. I can't imagine being a current cancer patient and trying to deal with that. Doesn't seem to be just one dept. It's the same in all of them. Drs need to make certain that their staff is doing the proper follow up in a timely fashion and that their staff has an easy method of leaving a message, be it phone mail or email. Relieving this type of frustration helps everyone.
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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