| Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Thursday I will be co teaching a workshop called the Colloquium on Head and Neck Cancer at the College of Medicine at Moffitt. My RO, Dr Trotti, requires all his students to attend and he said over 100 will be there. Obviously Trotti will handle the technical side and I am to address the patient side. The workshop is scheduled to last half a day so I will have plenty of time to address our issues. Some of the time I am "up" will be devoted to a Q and A session and Trotti said to expect a very open and detailed discussion.
This post is taking a long time since my office cat, Annie, has decided to bond with my monitor.
Anyway, I know my problems and since I have been associated with this site I have learned a lot about what other people encounter but it would be very helpful if each of you could perhaps mention 2 of the most important points you would like to pass on to these future cancer docs. I wish Brian's knowledge was crammed into my head one one day but that ain't gonna happen so I gotta go with what I can cram in with your help.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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