Hi, Amber:

This is my first post. My husband has just been through tonsil cancer treatment with 2 surgeries, chemotherapy (Cisplatin) and 30 IMRT radiation treatments. We didn't want to get a PEG tube but he was losing so much weight we had to do it about 3 weeks into the treatment. The tube was a godsend in keeping him from wasting away, also necessary to take pain meds. He had it for about 3 months. If your Dad is already in pain and having trouble swallowing, you should ask about having a tube installed. Good luck on the dental work. It's important to have it taken care of before radiation treatment starts.

I wish you and your Dad all the luck and good vibes in the world. My husband Chris is 49 and it's taking him some real time to recover from the treatments. You and your Dad will need all the support you can get from friends and family. One thing that has bugged Chris is that he feels like some family members only focus on the f the cancer and don't talk to him like a person anymore. It takes a balance. Friends are wonderful and they want to help but may not know what to do. Take advantage of offers to drive, cook, etc. You will get tired if you are the main caregiver and you have children to care for as well. Find a support network for yourself so you can stay functional for your Dad and the rest of your family.

Best wishes
Amy


Chris smoked for about 30 years but finally quit about 10 years ago. Please encourage your Dad to quit if he's still smoking.


Amy, wife of Chris left tonsil dx 8/04. T2N3M0, Stage IV. Tonsillectomy, L+R neck dissection, 6 L + 1 R nodes positive. Cisplatin and concurrent IMRT Radiation x30 + Amifostine. Followed by 4 weeks Erbitux (monoclonal antibody) ending 1/05).