glad to see the crazy is gone from the board today. someone thought they were clever.

biopsy today ENT said it's probably 75% chance of cancer. the tumor board met and were quite concerned but he told me that it seemed more like necrosis from radiation and if i had him backed into a corner, that's what he felt he was seeing. He said it looked like cancer a few months ago but it wasn't so i'm holding my breath.

feeding tube was cleaned out and sutured. It had not healed and was spilling out food and even more painful. They put in staples that need to be removed. I said...gee, you had a c section but no baby! I've had 2 c sections so now he got to experience it. He said this is 3-5 times worse than the feeding tube while it was still in. And remember, he barely took pain meds during radiation. The feeding tube has been an issue since last August. No one in my area (2 counties have been called) carried Lortab (I believe) so he's taking the hydrocodone he never took during radiation and chemo. he had a full bottle.

So i will update on Monday. Long long day. 3 hours under to do both procedures and 8 hours at the hospital. I"m exhausted and he looks like he went through a war.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free