I went from 245 to 130 in less than a month. I gained 50 pounds back since, minus losses after treatments here and there, and 173 now, which latest was nutrient deprivation, which can be gained back, unlike metabolially from cachexia. Your situation is unique, came back, and walking 3 miles! I was never told why I couln't walk, which bothers me the most...weakness, muscle atrophy, septic shock, neuropathy? I'm thinking Gallium Barre Syndrome, in addition to Steven Johnson Syndrome like ailments I had effecting the mucous and skin. I get a kick out of reading my assessment report that I would never recover. Like you said, no giving up!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs