| Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | The submental area is common for BOT recurrence and the "norm" would be ND of some type with many nodes removed for biopsy and hard to get them to take just a node out. I have some hard cysts that they keep telling me are sebaceous cysts from radiation and they keep getting bigger so they want to take a couple of them out at the same time. I guess to answer your question, they would not want to just remove one node and unless I get bulked up and put back some more of that 100 lbs I have lost they don't think I would make it through a surgery at this point. I think that gives me a few months reprieve and an opportunity to refire some atrophied muscle. It is more the entire neck and facial muscles are fasiculating like crazy and further nerve damage could result in inability to hold my head up and there doesn't seem to be a good case to make that happen faster than it already is. I have no pectoral muscles left except the one they would want to use. Makes it quite the dilemma.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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