| Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lola,
Unfortunately one of the greatest things the mind does is wander places that we never imagined possible. While good when planning vacations it really sucks in Cancer world. We could easily think of seemingly infinite possibilities but it just can't be that many things. Try to keep busy and spend time around those that are kind to you; those that love you, too. You are officially a cancer free survivor until they prove otherwise so enjoy every precious second of life. You have a guaranty until they prove you should worry cancer has returned.
I have had som very strange things like sebaceous glands that burn up and swell and get hard; I have had lymph nodes swell and get hard but later dissipate; I have had sores that lingered in radiated areas. The list goes on and each thing that seems different becomes a potential enemy in the after treatment phase. Some may be and some may not be. You just never know until they can prove it.
Best wishes for a false alarm.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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