Hello... I have been feeling "unwell" since August. Started with severe fatigue, low grade fever, swollen lymph nodes in back of head and neck and unintentional weight loss (13 pounds) I have been to almost every kind of specialist:
Infectious disease- ran a lot of blood tests, some of which came back out of normal range.. but not infectious. A few tests came back showing malabsorption.(B12, folic and Vit D low).
GI doctor-upper endo, colonoscopy(both with biopsies), CT abdomen and pelvis- Normal
Rheumatologist-Bloodwork and full body bone scan - Normal. Sent to Hem/Oncologist-
Hem/Onc-not worried about the size of my nodes... wanted to know "Why I was there to see her". Ran bloodwork to check to see if still malabsorbing.... Still waiting on results
Occipital nodes very swollen and so itchy waking me up at night-family Dr. orders ultrasound of neck - Shows enlarged nodes, but not large enough to biopsy. Radiologist notices thyroid nodules.
Family Dr. orders US of Thyroid-found "Multiple solid and cystic nodules" largest 1.6 cm - sent to Endocrinologist.
Endo - not too concerned with nodules, but wants to do FNB of largest just to be sure.
Family Dr. orders CT scan of head and neck. Just called me and said they saw several "dense spots" on base of tongue, wants me to see ENT for further evaluation.
My current symptoms: severe fatigue, pain in back of neck, L shoulder and L arm with weakness, multiple swollen nodes behind ears, back of head at hairline, neck, arm pit and groin, sore neck muscles(when I turn my head). Headaches daily, trouble sleeping due to sore neck and itchy sore nodes.
Can all this be caused by the "dense spots" on the base of my tongue? Should it have taken this long to find? I feel like I've been doing the "doctor dance" and going broke in the meantime. I am someone who just wants to know what they are dealing with ... so I can deal with it and move on. My quality of life currently is hugely impacted, I have zero energy and am doing everything I can just to make it through each work day. As you can probably tell, I am really frustrated by the time it is taking to get to a diagnosis. Is there a point where a doctor should put someone in the hospital to figure out what is going on? Any feedback would be appreciated.. Thanks for listening/reading.
