Thanks guys.
That's not to say it is all plain sailing now.
Kris has does have on going issues.
There is still the PEG to get rid of - hopefully soon. Food/eating is a huge problem. As well as the desert /dry mouth his tongue is paralysed on the Right side. This is because the troublesome lymph node was pressing on the Hypoglossal nerve and the damage is permanent. The speech therapist has told me he will always be on ensure to maintain calories. We argue every day regarding his intake. He can only swallow liquids and smoothies custards and yoghurt are pretty limiting. I'm trying to "let go" and give all the responsibility to him, but after managing his care and treatment for 8 months now I am finding it hard.
But, he's alive and surviving. I am so grateful.
Tammy