yes a very big congratulations to you and kris! i'm on board with "EDUCATE!" actually just today i was thinking, why didn't my RO or my ENT surgeon give me any information on the OCF website/forum, or any websites for that matter. i found out all my information through google, and thank goodness i came across this forum. speaking of education...a friend of mine said to me "well you really don't need to mention to anyone you have (insert whisper) HPV" my response was "are you kidding me i want to stand on the side of the freeway with a big poster and warn anyone who is willing to listen to me!" thanks for inspiring me to keep on educating others.

Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!