| "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Loved the article Dr Brook (hope you don't mind I saved it for my Alex)
Alex and I also stuggled with the apparent lack of empathy from the RO around side effects and turned to the nurses and speech pathologist for practical support. Our RO kept telling Alex to "eat more" and "try harder" and that he couldn't see any reason why he still couldn't eat. This, despite the fact he had a report from the modified barium swallow that told him Alex had real functional issues with swallowing.
There is so much more but I will not go on ...
Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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