| "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I have to agree with anne o - I too had a lesion on my tongue - my CT showed no spread to my lymph nodes. There were 6 weeks between my diagnosis and my surgery as I was diagnosed before Christmas - over the Christmas holiday I ended up with one swollen lymph node- I could palpate it. After new years I had an MRI - my lymph node did not highlight. My surgery was booked. My dr. Who is top in his field here in Canada - told me he wanted to do a hemiglossectomy and neck dissection. I was good with this as I know this cancer can be aggressive and know that it could easily have spread. The day of my surgery I took the dr.s finger placed it on the swollen lymph node. he asked if it was new - told him I had felt it from before new years, and it didn't highlight on the MRI depite it's size- it was 1.5 cm. They removed a portion of my tongue rebuilt it and removed 40 lymph nodes - one of which did have cancer cells. The surgery is big, no lie, but for me it was well worth it. I am two days away from fishing my radiation and chemo. I was out of the hospital and eating fairly normally within 10 days. My neck is stiff but has loosened up considerablly - I'm not swollen - though radiation has made the healing harder. My concern with a needle biopsy is that they may miss small cells that could be cancerous. I know nodes can swell for a variety of reasons, infection, inflammation, etc... But not knowing for sure would freak me out. I know it seems crazy to jump into a big operation like that if you didn't need it, but I would rather put up with the recovery than go through a surgery, wait a few months and find out it was in my nodes and have to go for another surgery. Then possible chemo and radiation. But then I had a small node highlight on my other side just at the start of radiation and told them to include the right side with the left for my radiation so - maybe I am into overkill.
I know it's a hard decision - but this is an insidious and aggressive disease Do what you can to elimintate it - first time out. There are no guarantees we could possibly do everything and still have it recur. But at lease you have no what if it hads?...
Good luck tomorrow
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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