| "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | My Alex reports that when he moves his neck (usually suddenly) he feels a "jolt" in his feet. As a veteran of many many electric shocks (he should have been a plumber), he describes it as a mild electric shock - not enough to blast him across the road but enough to stop whatever he was doing.
I think (a big guess) the mechanics of this might be nerve damage in the neck area caused by radiation creating a "misfire" down the spinal column, but am keen to get others' experience or thoughts. Guesses as to what's going on also welcome.
Is this something we should panic about now (ie move doctor appointment up to next week) or wait till our appointment in 3 weeks? Who might be the best healthcare professional to raise this with? Is it likely to deteriorate and if so, to what? What treatment to halt progression (if any) is warranted? Is there physio Alex should be doing (God help me, if there is, I can't even get him to spray his oral antibiotic or moisturise his face and neck every day)?
Pain is not really an issue at the moment as the sensation is more of a surprise than actual pain.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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