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| | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Very appropriate that Alex finished his treatment on Daffodil day. Steve finished his treatment on daffodil day last year so we just passed the 1 year mark.
I can't believe you haven't been told about Fentanyl patches yet. Steve was using them before he even began his treatment. His doctor gave him them as soon as we arrived in NSW. They work well. Steve never went over 37mg on his dose and he weened off them very easily (low dose probably helped) but they made a massive difference in his pain levels.
So glad to hear you both have gotten through the treatment. Also glad to see you could still appreciate the beauty throughout this. Watching the sun rise over the opera house would be spectacular. Take all the beautiful moments you can. They are there but sometimes we just have to look a bit for them. It's a rough road and the recovery process goes on for a long time.
Take care, both of you. Happy to see your sense of humour is still there. Steve chose not to speak too much after treatment ended also as it was painful. It didn't last long though. A week of no treatment and he was feeling much better.
Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started. 17/03/22 lost the battle. Missed dearly
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