My husband is 32 yrs. and was diagnosed 11/05/09 with Mucoepidermoid Carcinoma. At first he was told he would need a hemi maxillectomy & radiation. Then we found an ENT cancer surgeon who felt he could just core out the tumor - unless more cancer was found during the surgery.
On 12/21/09, my husband had a partial maxillectomy. The pathology report came back saying there was no cancer found in the bone, but it was found in the nerves.
Our surgeon said that even though radiation to the mouth and neck was recommended by the board, he would not have it done if he were in my husbands shoes.
My husband's next MRI will be the 2cd week of March. Since he has recovered from surgery, he has started eating a raw diet and taking supplements. He is concerned about a recurrence of cancer, but the side effects of radiation scared him more. He is adjusting to life with his obturater, and all the ways his speech and ability to eat have changed.
I know this is just my introduction post, but I do hope some of you could offer advice and what you did to treat MEC. Thanks & God bless!