Pat

So sorry you and your husband have reason to join our little club. I know what a hassle it is to be on a feeding tube permanently. Not many of us have to have a PEG for life, but it does beat dying. This is a great group and I'm glad you found us. Feel free to vent here, we understand.
I recommend you read our Coping/Anger & Fear forum - especially our "Don't you just hate it" thread (Over 13,000 views suggest it is worth wading thru the 22 pages of posts) - you will recognize that indeed "there are others"
Charm