That is good advice Kelly just gave you. Get on the tele[hone or the internet and you will find what you need. A CCC or and a good onclogist. I traveled 3 states for treatments. I found most on the internet including the Ohio State Unisversity CCC and the name of the Oncologist that operated on me there. I called his office and was surprised because I had an appt. with in 3 days with him and about 2 to 3 days later was in the OR. This is too much to wait and worry about.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here