| Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | News from today with Dr.... There is no cancer showing up on the CT but Monday I have to get a PetScan of the rest of my upper body. The CT was just of my mouth area. Exposeed bone can really raise hell with the feelings where it eats away the flesh. My daughter got to look at my mouth and now knows what we go thru with this stuff. I go Monday for a Pet of the rest of my upper body . He is going to set it up with an Oral Surgeon to take away bone a little at a time to find good flesh to feed my jaw and that might get the flesh to grow back. He thinks the HBO might do the trick, but as I told him, that is just too much money and way too much traffic. We are going to check out all options when we get the results of the Pet. One side is brown dead flesh and the other is yellowish and dead too. There is all I can report right now. It's funny, I can't feel the bone of the left side where the pain is the worst and it is the side with the most dead flesh.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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