Previous Thread
Next Thread
Print Thread
#195359 11-09-2017 12:19 PM
Joined: Nov 2017
Posts: 18
Member
OP Offline
Member

Joined: Nov 2017
Posts: 18
Hello all,
I was recently diagnosed with mild oral dysplasia under my tongue. My doctor was just as surprised as I was considering I do not drink or smoke, am young (26) and am not sexually active. We are going to watch it and I am going back in a month to assess it again. Needless to say I am nervous about this and was wondering what I should expect. The Dr. told me it as a very small chance to progress to cancer ( he told me like 2%) but I am naturally still worried.

Thanks!

Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF! Im sorry to hear of your dysplasia diagnosis. Your doc is correct, most dysplasia does not turn into cancer but sometimes it can change. By your being observant by checking it every few weeks if any changes would happen you will catch it super early. Hopefully yours will not change and you will not need any further treatment.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2017
Posts: 18
Member
OP Offline
Member

Joined: Nov 2017
Posts: 18
Thanks for the response! I'm just shocked because I have no risk factors like I mentioned.. It's just disappointing to have something always on my mind. I know I should be glad it's nothing yet but it still bothers me.

Joined: Oct 2017
Posts: 6
Member
Offline
Member

Joined: Oct 2017
Posts: 6
You are doing the right things! I can understand how it causes anxiety as I also have no risk factors, but these things change, new risks develop. Keep doing what you are doing and seek help on how to deal with having it on your mind if you find it to be overwhelming. Find what works for you, eating healthy, meditation and yoga and walks seem to make me feel better.


White film on tongue biopsy was benign 4/7/17
Went for a check in October 2017, where it was found to MET
SCC 10/13/17 Stag I, age42
11/13/17 partial glossectomy and rnd
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
The 'no risk factors' thing is getting more and more common. What that really means is that there's a lot they don't know, and a lot they didn't know they didn't know. Your chances of having cancer are slim, but you wouldn't be alone if it did happen. You take care of yourself, be aware but not anxious, and know that folks here are on your side.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5