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#99403 07-13-2009 07:58 PM
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ESikon Offline OP
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I just had surgery and will start radiation soon. If I remember right they said rad will start approx 6 weeks after surgery, is this too early? Just wanted to get your opinions, I want to heal properly but at the same time get this all over with. I will meet with drs next week to get more of a timeframe. Thanks!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #99404 07-13-2009 08:00 PM
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I did not have to go through radiation. I know others have and will be able to answer your questions. I can not believe you are posting so soon after your surgery. How are you feeling?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #99409 07-13-2009 08:13 PM
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I started radiation six weeks after surgery and I was more than ready to start by then. If I recall, the docs were shooting for 4 - 6 weeks out, but scheduling pushed it out to the full six weeks.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
margaret_in_ma #99413 07-13-2009 08:58 PM
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ESikon Offline OP
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I'm doing as good as can be expected. I;m having my husband work on uploading the pics from my hospital stay. I tend to get on the computer when I am getting my feedings, since its a long process. For some reason, I can only do 1.5 cans and it takes about 1.5hrs!!LOL My stomach gets full and uncomfortable, I was told it could take some time to adjust. I have pain but the Lortab takes care of it, and I try to only take it twice per day before I do my therapy exercises. I've had a ton of support to help me recover, so I think that in itself has done a ton in helping me heal!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #99419 07-14-2009 03:26 AM
Joined: Jun 2007
Posts: 5,260
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I had rads and chemo after my surgery. and after the removal of my Ivorys' LOl. Mine was in preperation of Rad seed implants into my tongue tho.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #99430 07-14-2009 05:59 AM
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1.5 cans of what? Are you being fed thru a Peg?

I know you are glad the surgery is finally over and I'm sure your doctors will not start the rad until you are healed enough.

Eat Eat Eat as much as you can as soon as you can. If you have the Peg already I'm sure you will keep it during and post rad but swallow as often as you can to keep those muscles in "shape".


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99453 07-14-2009 12:49 PM
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ESikon Offline OP
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David - I get 1.5 cans of Fibersource HN through my PEG tube. I'm not eating all of it, suppose to be 6 cans a day and all I can get in is 4.5 cans along with a scoop of extra protein supplement. I go for my barium swallow study tomorrow, so hopefully I can get the green light to start eating/drinking stuff. Right now I just want cold water!!!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #99457 07-14-2009 03:25 PM
Joined: Sep 2006
Posts: 8,311
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Good luck!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99506 07-15-2009 12:06 PM
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Yes Elizabeth, I begged for water during the hospital visit myself. I had my chemo/rads before my surgery so no clue about that dear.

Good luck

Be Well

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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