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Ray1971 #99217 07-10-2009 04:27 PM
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Christine,

I am struggling with how to respond to this latest news in your life...ugh...I can't believe you have to fight this monster again.

The thing that I do know is that you have the spirit to get thru this. You, of course, know that your buddies here on OCF will stay the course and be here to listen and send help your way when you need it.

Sending hugs...

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
mhupe #99218 07-10-2009 05:04 PM
Joined: May 2008
Posts: 551
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Posts: 551
Fellow Margaret,

I love it... 2010, never AGAIN!

Brilliant
cool


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
margaret_in_ma #99235 07-10-2009 08:18 PM
Joined: Aug 2008
Posts: 96
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Christine,
Since our PMs the other day, I have been watching for your post. You know that I am here for you along with everyone else on this forum.
Have as much fun as you can, for as long as you can!
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
ChristineB #99254 07-11-2009 07:44 AM
Joined: Mar 2008
Posts: 3,082
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Christine

Third time is just too hard. It's unfair. I don't know why some of us have to get treated like Job in the bible although I pray it all turns out well in the end (like Job). sorry but I can't think of anything cheerful nor inspirational. I don't think anyone who has not had a recurrence can truly appreciate what you are going through nor how hard it is. You amaze me with your strength and courage. As I have been posting recently on cancer survivor articles, I am sick and tired of the tyranny of positive thinking that permeates most of the public's comments and attitude towards cancer. Yes, we need to do what we need to do, but let's not minimize the real pain and horror we are enduring. This is terrible news.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #99283 07-11-2009 09:57 PM
Joined: Apr 2009
Posts: 104
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Posts: 104
I'm so sorry to read about this, Christine. We'll all be keeping you in our thoughts.


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #99306 07-12-2009 03:21 PM
Joined: Jun 2007
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To all my OCF pals....

THANKS!!!!!!!!!!!!!!!!!!!!!

I greatly appreciate every single one of you and your posts. It really will be ok. I know this. If its not ok, thats ok too. Guess that sounds kind of odd. After going thru this already twice and facing a huge surgery I understand the outcome is not in my control. I will put my complete trust in my doctors. Of course, I will lean on everybody here to keep me focused and upbeat.

I spent the past couple days trying to get my head straight about all this. I have a game plan in place and also a backup plan too. Then of course, I set up the final plan for if the worst happens. I have about a month to prepare and tons of things to do. Along with my plans, I still will continue with my normal routine as much as I possibly can.

I will get the surgery, recover and move on with my life. My new motto is 2010...NEVER AGAIN!!!!!!!!! Thanks Margaret smile



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #99311 07-12-2009 05:35 PM
Joined: Aug 2007
Posts: 1,301
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Lean away whenever you feel like it .. wink


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #99314 07-12-2009 05:53 PM
Joined: Nov 2005
Posts: 1,128
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Sorry to read that you've got it again, but glad to read that you found it early. I can see that you are approaching it all with the right attitude.

Be sure to get a good PEG!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #99336 07-13-2009 06:07 AM
Joined: Sep 2006
Posts: 8,311
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You are one GREAT COOKIE in the big bag of life Christine!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99337 07-13-2009 06:12 AM
Joined: Dec 2008
Posts: 1,004
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Christine...you ROCK!!! I just know you can do it. As Gabe says...lean away. Don't forget..we still have a road trip and we have to stop and see Jim...:)

xoxo
(((((((((((HUGS)))))))))))))))


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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