| Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2008 Posts: 130 | I was told no carbs or sugars of any kind. High protent diet only the day before. I was NPO after mid night. And I was in a dark room for the 45 minute wait. They told me not to even look around. Just close my eyes and relax. Strange how the rules change from one place to the next.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | FYI, Copy of my PET/CT Prep Sheet:
How to Prepare for your PET Exam
Exam Location: � Sharp Imaging Center - Mira Mesa
Name: _________________________________________________________________ Date of Exam: _________________________ Time of Exam: ____________________
� DAY BEFORE YOUR EXAM
1. Patient should eat a low carbohydrate diet. 2. Patient is not to engage in strenuous activity or exercise. If job is not too labor extensive, the patient may go.
� DAY OF TEST
1. No food 6 hours prior to test. 2. No caffeine or nicotine products 5 hours prior to test. 3. No diuretics the day of the test (water pills, lasix). Take all other medications as normal. 4. No gum chewing, no hard candy, and no breath mints the day of the test. 5. Drink 16-24 oz. of water prior to test. 6. Drink plenty of fluid after the test to flush out the system. 7. Wear comfortable clothing. Room temperature is approximately 72 degrees. � PET/CT sites � NO METAL ON CLOTHING 8. Test takes 45-90 minutes. Total time is 2 hours.
� TYPE TWO DIABETIC PATIENTS ON ORAL MEDICATIONS
1. Low Oral Carb Diet the day prior to test (should be no problem since the patient should be on a diabetic diet) 2. NPO (fasting) for 6 hours (minimum 4 hours) prior to the test. 3. If the scheduled patient time is very early in the morning (7am) the patient must fast and NOT take oral medication. 4. If the exam is later in the day, the patient should eat a light low carb meal and take their oral medication 4-6 hours prior to the test. 5. Patient may only have WATER ONLY during the 6 hour fasting period.
� TYPE ONE DIABETIC PATIENTS ON INSULIN INJECTIONS
1. Low carb diet the day prior to test (should be no problem since the patient should be on a diabetic diet) 2. If the scheduled patient time is very early in the morning (7am) the patient must fast and NOT take insulin medication. 3. If the exam is later in the day, the patient should eat a low carb meal and take � insulin medication at least 4 hours prior to the test. Please have patient bring the other � of the insulin medication with them to take after the test. 4. Patient may have WATER ONLY during the 6 hour fasting period. 5.
If you should have questions regarding your exam preparations call between the hours of 8:30am and 4:30pm. Mira Mesa � (858) 653-6130
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: May 2008 Posts: 357 | The techs told me I couldn't even read. I couldn't do anything that could potentially create energy, which would attract the radioactive stuff. They told me not to think too hard, either. I didn't have much in the ol' noggin that day, anyway.
They turned down the lights & closed the door. So, I closed my eyes or stared at the wall for the prep time.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am not good at sitting still. I think this is going to make me go nuts. Why do you have to avoid carbs 24 hours before the scan?
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | You need to have a low blood glucose level, so that when they give you the radioactive glucose it goes to the metabolically most active cells. These happen to be cancer cells, but there are also other possibilities. If you were to be active once you get the glucose it would end up in the muscles that were exercised.
....try not to think to hard.... too funny!!! But you certainly should not agitate yourself. If you look at a PET/CT scan have take a peek at your brain. The energy source for your brain is glucose and therefore it lights up like a christmas tree (which is normal).
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Also don't talk.... it will cause our throat to light up, and you don't want that for a false positive in an area they really want to look at. From the time of injection to the end of the scan there isn't anything that you need to say.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I had my PEt today and they told me that My Dr. would have the results tomorrow. I sure hope to find out.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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