| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I still have the excess and sometimes I choke on it until it comes out. Part of this new life we have and have to get used to it. Like everything,,, it all takes time.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Julieann: I'm a little behind in reading all the posts, but I have excessive mucus also. Here are some suggestions:
1. To increae "thin" saliva (which may help relieve the problem) see if you can find a acupuncturist that specializes in cancer. There have been several studies (Anderson, Texas) that have shown that acupuncture has helped to increase normal
salivary function.
2. My doctor told me to use "Tussin." (cough syrup just like Robatussin, but cheaper.) It breaks up the saliva for several hours.
I wish I could help more, but I'm also dealing with excessive muscus. But I also have the sores.
Good Luck
Sandy
Last edited by SandySt.; 07-01-2009 08:30 PM.
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | I know, Brian. My mouth is some better now, but for over a month it was so sore I could hardly chew; there were ulcer-like things on the inside of my cheek and my lips cracked on the sides. My general practitioner prescribed fluconazole
1-tablet pill because he considered it a yeast infection. The pill didn't work, but I had some Nystatin that I used a while back, and it seems to be working. I wanted to find out if I had a fungus or bacterial infection, or either. The mucus increased and thickened also. I'm not sure if increased mucus has anything to do with oral mucositis, or if my sore mouth is mucositis, but am trying to get an appointment with the UAB oral specialist who might be able to determine this. Thanks for your reply.
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | My guess is that it is a fungal (Candida) or bacterial infection. Candida is notorious for creating those kinds of sores in extreme cases. I get it once in awhile when I also get the flu or something else that takes down my immune system. Diflucan tabs over the course of a week always knocks it down for me. But as you are testimony to, as strong a drug as it is it doesn't always work for everyone.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Better watch the Tussin Sandy unless your Dr oks it. I was told don't.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Jim: Thanks for the advice, but it works fine for me. I don't take a lot, but it still seems to last for hours. HAPPY 4TH OF JULY 
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Jun 2009 Posts: 5 Member | | Member
Joined: Jun 2009 Posts: 5 | Hi Julie - yep, after I posted the message re: dentist, I saw I had misread your info - mixed it up w/someone else's thanks for the tip though.... | | |
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