Previous Thread
Next Thread
Print Thread
#98805 07-05-2009 02:30 PM
Joined: Feb 2008
Posts: 19
Pookie Offline OP
Member
OP Offline
Member

Joined: Feb 2008
Posts: 19
Ok, so it's back, had to have a node removed from my neck again, positive...Now I'm in the whirlwind of tests etc. The doc's are starting rads and chemo (5-FU and Cisplatin) on the 13th of July...my question is why do I have to be inpatient for the 5-FU, doc said that its infused over 96hrs. and that I need to be there for that. Isnt there an infusion pump or something, I'll be at the hosp every day for rad's anyway! A bit of help here would be appreciated


51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....
Pookie #98812 07-05-2009 05:18 PM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
I had 5-FU, Cisplatin and Taxatere on a Monday at the hospital for 8 hours and then a fanny pack (infusion kit) for the remaining 4 days of the week. It was removed on a Friday. So I don't understand why you need to stay in the hospital. I'd ask!!!


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

SandySt. #98835 07-06-2009 05:54 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Pookie,

Where exactly was your primary?

Sorry those nodes were positive and sorry that you will have the chemo/rad but the good news is this Tx will most likely kill all the cancer remaining forever!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #98860 07-06-2009 12:40 PM
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
That course of chemo is pretty intense. They probably just want to keep an eye on you to make sure your side effects are OK and that your fluids are regulated.

Sorry you are going through this!

K


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
davidcpa #98881 07-06-2009 06:00 PM
Joined: Feb 2008
Posts: 19
Pookie Offline OP
Member
OP Offline
Member

Joined: Feb 2008
Posts: 19
My primary was on the side of the tongue not too large, but due to the depth, had a nd, of the many nodes removed one was positive,small and pretty high so no further treatment. That was March 08, had been clear since then until I noticed a lump in my neck pretty much right at the bottom of the U of my scar. Nothing on the tongue, having a PET scan tomorrow. I am not the "typical".... non smoker (except I grew up in a house of smokers where you could cut it with a knife) social drinker, neg for HPV.


51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....
Pookie #98927 07-07-2009 05:59 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Pookie,

Actually you are a "typical" OC patient as lately we are seeing a lot of people who present themselves just like you, i.e., non smokers, young(er) and HPV negative. There now seems to be 3 distinctive "typical" OC patients coming to this site,

1. Tobacco users, Primaries everywhere except the BOT and Tonsils and HPV-,

2. Non tobacco users, Primaries BOT or Tonsils, younger than group 1 and HPV+ and

3. Non tobacco users, Primaries usually in the tongue, younger than group 2 and HPV-.

These are just my observations.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #98935 07-07-2009 06:37 AM
Joined: Oct 2008
Posts: 49
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Oct 2008
Posts: 49
Pookie,

My hubby had the same treatment as you, only the 5FU was given by infusion pump AT HOME with visiting nurses removing the pump. You should check this out; possibly you have some other health issue? (diabetes, etc?) If not, talk to them. Possibly your insurance requires that you stay in the hospital.

Best regards!


Donna

Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5