#98727 07-04-2009 01:28 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have a question for everyone, Ho many lost the ability to sneeze for a lot of months? My being able to sneeze is just returning. I really didn't pay attention to losing it until it has started to return. Has any one else experienced this loss??
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Never heard of that one Jim but if anyone could have that as a side effect it might as well be you since you get everything. lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | For me, it was so incredibly painful to sneeze, and still hurts, two months post-treatment, that I try to stifle it every time. But other than that, I had no problems, nor was told to anticipate any.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Oh yeah....sneezing was SO PAINFUL for me. My treatment was very different from your Jim, but I didn't lose the ability.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | This topic sure brought back some unpleasant memories. I had to take breakthrough meds after I sneezed late and early post Tx. Even yawning was very painful at times.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Yawning is VERY painful. The doctors say to exercise the jaw by opening it wide, but that doesn't hurt at all. Yawning process is different somehow. I am longing for the day when I can finally let out a satisfying yawn.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Yawning is surely the work of the devil. I go through about two yawning fits a day. I think it is different because you really lack control over a yawn. You are at it's mercy, were the stretching excerices, your in control. I have been almost brought to my knees by a strong yawn.
Sneezing use to hurt my jaw/mouth area. Those parts must have healed as now a sneeze while standing just makes my back scream like the old days.
Amy
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | When I yawn which is often, My throat feels like it has frozen it time. Damn it hurts.Right in the dissection area.It locked up pretty good yesterday. You all know my mouth gets it's workout LOL Daily too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 13 Member | | Member
Joined: Jun 2009 Posts: 13 | Hi Jim, I can't sneeze either! I just thought it was my crazy nose or something, I didn't think about it being caused by the cancer/treatment!
I go Ahh...Ahh... and then no Chooo! It drives me crazy. I have to sneeze really badly, but I can't get it out. No matter how much I need to sneeze, always just the Ahh...Ahh... part.
I can't yawn either. I told my husband to stop yawning in front of me because then I want to yawn too, but I can't. Oh what a day it will be when I can let out a satisfying sneeze and yawn!
One more quirky thing--I get the hiccups every day now. I never got them before the radiation, but now get them constantly. Sometimes several times a day. Anyone have that?
Sone | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am so glad you posted this Sone LOL I believe they thought I lost the clapper out of my bell. I had the hiccups too but they left the constant stage not long ago and are infrequent now. I know exaclty what you feel like. hey Hubby. cut her a break and yawn outside LOL Have a good day you 2.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Oh God! I had the hiccups so BAD! They were intractable. Not sure what caused it and I tried every drug known to man to stop it. I think it was a combination of muscle relaxers, narcotics , antiacids and steroids that finally gave me some releif. It was really wierd too - it would actually stop when I would eat - then pick up where it left off when I was done. It went on for weeks. I couldn't get any real rest or sleep - even with sleeping meds. It was hell...
The good news is I don't have them now.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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