#98248 06-27-2009 11:00 AM | Joined: Jun 2009 Posts: 17 Member | OP  Member
Joined: Jun 2009 Posts: 17 | My husband was prescribed Erbitux, but research brought me to Nimotuzumab. It sounds much gentler. No rash. We go to the Tampa FL Veterans hospital and my research also found: Curing Cancer Takes Heart - or Heart Hormones, Maybe "The world of medical research is taking growing notice of Vesely's discoveries, made in a maze of small, crowded labs at the James A. Haley VA Medical Center. The widowed father of five, whose wife died of breast cancer in 2002, has big, seemingly impossible hopes that four hormones manufactured by the heart may one day save millions of lives."
Husband 79 metastatic cancer neck lymph nodes, biopsy Moffitt showed base of tongue, tonsil & vallecula. VA in Tampa - Teeth out 6/16, Radiation 5X7 and Erbitux 7/13 Carboplatin 8/4 - Amifostine added 8/6
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | I went to the Nimotuzumab site, it doesn't appear that it is approved for use in the US. Erbitux wasn't a picnic, but I do think it was easier (nausea-wise) than Cisplatin. Have you spoken to your doctor about Nimotuzumab? Are there clinical trials that your husband qualifies for with this drug?
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | As long as some idiots don't start saying the heart hormones are the same as stem cell research and try to create trouble just to get their names in the news like most loud mouths do.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Stumble,
The rash should be fairly easily treated. I took antibiotics which cleared it up quite well. The thing I had to be most careful of was the skin on my hands and feet splitting, which could have gotten infected. Thorough hand washing and good moisturizing lotion helped a lot with that.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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