| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Great job Bill. Sounds like you approached it in an organized and pragmatic way. Now you get on with the job of healing. I am surpriswed that given your intake that you still lost 30 lbs! No, I never want to go on the "RO" diet again, but it does seem effective!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Congratulations!!
Every week from here on out will be better the the previous one!!
Way to go!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2009 Posts: 72 | Congratulations on getting finished with your treatment.
I'm impressed that you did it without a PEG. My husband is on day 13 radiation and already everything he eats tastes repulsive. He also has chemo every 3 weeks. He is trying to take it lots of calories but so far he is losing weight. He had a tonsillectomy which set him back as far as putting weight on before the treatment. He is very slim at 5'11 and 152 lbs down from 165lbs. We haven't gotten a PEG yet, the Drs want him to try and do without.
Did food tastes bad to you? Could you afford to lose 30lbs and do you feel not getting a PEG was a good choice? Did you even consider a PEG? He drinks lots of ensure and we ordered the carnation VHC. These are questions we are grappling with. I'm very impressed on how well you have done, thanks for sharing.
Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX
3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
| | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 | Vanessa,
I just ate every day. Did I like the food I ate, HELL no, did it taste good HELL no. I just knew that I needed to do to get through this journey. My doctors were not concerened because I weighed 247 lbs when I started. They were watching my weight loss in conjunction with my weekly blood work and dr. visits. If at anytime the medical team told me I would need a peg, it would have been done with no fight from me.
Every time I ate I told myself, "just get through today and you will be closer to your next pizza and cheesburger". I can only say that I live my entire life by "One day at a time". I don't know if the fact that I had no chemo was a plus for me but I must think it was.
Please feel free to ask me anthing you want. I am not a professional, just a survivor like so many many others on this cite.
Last but most important of all, in my opinion, the power of prayer and God was also their to provide me the daily courage and strength I needed to get through day by day!
Best of Luck I will keep you in my prayers!
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2009 Posts: 72 | Thanks for your reply. Jeff is taking it "one day at a time" and I agree that is the best advice ever!
Keep healing.
Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX
3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Wow, I am so impressed! You seem to have coped really well with TX, and without the tube.
Well done and carry on doing what you are doing, it seems to work!
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I like Suzanne have not had radiation or chemo. As my Dr. says I may need in the future if there is a reoccurence. That scares me to death. At the same time I see all of the members of this board who have made it through and survived. All of you are an inspiration to me.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Congrats!!! I am getting ready to end my 2nd week and I can already tell you if they give me that mask to take home as a trophy I am burning that SOB!!!! lol, I am glad to hear a GOOD story...well if you consider that good. I as well did not elect for the PEG, my weight when I started was 195 and I am 196.8 today. Although I am only 8 treatments into my 33 I pretty much have lost all taste and my tongue has that burning sensation. Other than that all good! I know the fun hasnt even begun yet. Anyways good luck with the next couple weeks and I will keep you all posted on my next 25 treatments! As for you walknite.....get your ass to an RO! I like you had the surgery and am completely cancer free (well according to the PET and CT) the last thing you want is a reoccurence!!! lol, anybody on here that has watched me progress the past 4 months is looking at that advice and laughing.....trust me! Good Day
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Jul 2009 Posts: 1 Member | | Member
Joined: Jul 2009 Posts: 1 | God Bless you. I went though 6 weeks and I just made it. In a year time I lost a 100 Lbs. and dropped 14in off my waist. I take my hat off to you for going though so munch. I foumd I could Stand a mild smoked sauage, because of this I was able to avoid a feeding tube. I hope that this will work for you. | | |
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