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#98170 06-26-2009 08:29 AM
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jrch26 Offline OP
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So my mom had a ct scan yesterday and saw the MO this morning. Not good was the text I received from my sister while in the office.

They said that the tumor in her face is growing. She has tumor in her rib that has the rib ready to break. There are also lymphnodes in the chest that have grown.

They are doing a one time only radiation at the spot on the rib and starting her on taxol/Erbitux once weekly.

Did I mention that I HATE CANCER!


26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
jrch26 #98174 06-26-2009 10:11 AM
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"OCF Canuck"
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Hi Colleen.

You have grown so much in the last several months - you have found a way to confront your fears in order to be there for your Mom. I know you will, with the help of family and friends (your OCF family included), find a way to be there for your Mom again - regardless of what path this disease is taking.

We all agree. Cancer sucks - big time. The best we can do is to be there for each other and make sure that none of us walks this path alone.

Hugs. Lean on your immediate family and friends - as well as us - to help you help your Mom. You will NEVER regret the time you spend with her.

Donna

Last edited by Pandora99; 06-26-2009 10:12 AM.

Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #98175 06-26-2009 10:15 AM
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Posts: 48
jrch26 Offline OP
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Thank you Donna, you have always given me such wonderful advice.

The thing I am struggling with the most here is the fact that I just feel so badly for her, she shouldnt have to deal with this.

I feel like I wanna lay on the ground and kick my feet like a little kid and scream at the top of my lungs that this isnt fair!!!


26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
jrch26 #98195 06-26-2009 04:11 PM
Joined: Sep 2008
Posts: 130
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Posts: 130
Then lay on the ground and kick as hard as you can and scream. When you've spent all that bad energy get up and go take care of your mother. You'll feel better and probably sleep better too.
You're allowed to throw fits, it's ok. No rule against it.

Amy


40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
AmyK #98202 06-26-2009 05:39 PM
Joined: Jun 2007
Posts: 5,260
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If kicking and screaming don't do it, go upset a Japanese or Korean car . That will make a lot of us feel better. You scream, you kick, you cry, you do whatever makes you feel better and we will all love you for expressing yourself. It might help relax you just a little too.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #98220 06-26-2009 10:04 PM
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"OCF Canuck"
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Totally agree - do what you need to do. Might be fun to lay down and just have a total 2 year old temper tantrum! Get a block of wood and pound nails into it until your arms are weak. Its not fair and its not right. Your Mom should not have to go through this and there should be an answer to WHY. But there isn't.

I still struggle with control issues. I still believe in the illusion that I have control over at least some things in life when the truth is I don't. I do have control over how I react to them - but I have no control over the actual events.

Kick, scream - punch something and repeat. We understand your frustration and I'm sure you Mom is feeling some of it too. Keep posting - we're here for you.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #98232 06-27-2009 05:06 AM
Joined: Jan 2008
Posts: 706
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Believe me, don't hold your feelings in. I too tried to keep them in control but they will manifest in one way or another and you don't want them to make you sick. Get them out-yell, cry, tell God that you are PISSED! Spend as much time with your Mom as possible and don't get to caught up in the rest of the BS of daily life-you won't regret the time you spend with her.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #98238 06-27-2009 07:28 AM
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Hi Colleen,

I am so proud of you and what you have accomplished. You can do this too. I agree with the others, if you want to lay down and kick and scream, go ahead! Don't hold it. Forgive me if I sound like a broken record but I held everything for the first couple of years and I ended up having a panic attack at work, in a meeting with a lot of big wigs. I had to excuse myself and get my husband (we work together) and go to the hospital. Let yourself feel what you need to and express your anger anyway you see fit. We are here for you and we understand that this disease it terrible.

xoxo


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #98244 06-27-2009 08:23 AM
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Posts: 716
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Go ahead and scream..cry...kick...roll on the floor...it's okay to act out...


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better

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