#97676 06-19-2009 10:47 AM | Joined: May 2009 Posts: 14 Member | OP  Member
Joined: May 2009 Posts: 14 | My husband is scheduled to have his PEG tube removed next Friday. What can we expect- any pain? We have an appointment for a "tasting" for my daughter's wedding reception that night, should he be ok to attend (albeit eating soft food...)
Thanks for sharing your experience and feedback.
Spouse
Husband age 55
SCC BOT and 3 nodes HPV 16+ Diagnosed 2/13/09 Stage 4 T2N3M0
Neck Dissection 2/13/09, 6 chemo cysplatin/taxol, 35 rad TX completed 5/8/09, PEG removed 6/26/09, PET Scan 8/3, 2/3 Clear!
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | The removal is very quick!! Pain, yes but for a few minutes. The most important is keeping area clean while it finishes healing. you will be so happy not to have that attachment anymore!! Go to Wedding Reception and have a nice time!!  Take care and enjoy!! Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hello
A big tug when it come out but over very quick(thank goodness)
I did fine until the middle of the night. I woke up in pain, but
took something for the pain and went back to sleep. A little sore,
but OK in the morning.
I ate what I wanted. I have heard you should stay away from carbonated drinks for a few days, but I only drink water so
I cannot say with any real knowledge. I do not know about wine,
it should be OK I would think. Surely your doctor could advise you.
(Well, sometimes they can, I should say-some of mine not too helpful)
Maybe others will answer you also. I know I was totally stressed
the day of.
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | My PEG actually fell out in the shower when I was recovering from my neck dissection,mandiblectomy,fibular free flap surgery last year. I didn't feel a thing when it came out and was shocked to see it laying on the shower bench. It hurt like hell when they put it back in without a local or general, I'm still bitter about that, mostly because I couldn't scream as I had my jaw wired shut.
I had it permanently (hopefully) removed a few weeks ago under general anesthesia during a different surgery so I didn't feel a thing. The spot has been sore though and I feel strange not having it as a backup...but it's definetly better not to have it.
hope that helps, probably not though
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Awesome that it's coming out! My doctor was excited to yank it out as it meant you were on the road to recovery. Just feels like a bee sting and over in a second. He'll be fine to attend the event. Congrats.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2008 Posts: 49 | When they pulled out my hubby's tube, he said it wasn't anything compared to everything else...I watched; they just "pop" it out and then out a bandage over it. Three days later we went out fishing on our boat and he even had a few beers afterward. Have a great time at the wedding...you deserve it!
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | To have the PEG tube removed is very simple. Your husband will feel fine after a few minutes. Its going to make him feel great when he stands up. I was so happy that I could finally stand up straight again. A word of caution, it does hurt like heck when they pull it out but within 5 minutes the pain is gone. Maybe a tiny bit sore at the site, but not a big deal. Its a huge accomplishment to be PEG free 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Some of the PEG tubes are 'anchored' with a balloon or donut-shaped obstruction on the end (Both of my 20F tubes have/had that). These are the ones that get yanked for removal.
Others rely on a couple of twists and longer length to keep them in, with nothing on the end (My 12F tube was like that; I removed and reinstalled it three times to unclog it).
Still others, like the Mic-Key button, have a balloon that's filled with water on installation, but drained for easy removal.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2008 Posts: 14 Member | | Member
Joined: Nov 2008 Posts: 14 | I just had mine removed today. It really is a graduation day. You feel so excited because it is one more step on the road to normalacy. It didn't hurt when they pulled it out, but you did have the tug on your stomach feeling and then it was gone. the paperwork took longer than the procedure.
Male Age 65 non smoker, non drinker T2N1M0 2 Jun 2008 Partial Glossectomy & neck dissection; lymph node tumor right neck 27 Jan 2009 Modified neck dissection, 26 Feb-16 Apr 2009 Erbitux, 9 March - 20 April RT; 11 Sep 2009 lymph node tumor left neck; 4 Nov removal of manubrium and large tumor
| | | | | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | I just got my PEG removed on June 12th. I played golf the next morning! There was a little sting and the doc said, "that's it." What hurt the most was pulling off the bandage that night when taking a shower. I had a nice shirt on when they pulled it and had them bandage it up so i wouldn't get any blood on it. It did not bleed the next day at all and i regret shaving the hair around it a little to prevent going through the pain of pulling the bandage off again. If you are like my wife, you will enjoy that PEG being gone as much as he does ;-) He should be able to eat whatever he is eating now.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
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