#97918 06-22-2009 06:50 PM | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Hi Everyone: I finally finished radiation today. yipee!!!!!  As some of you know, I was very, very fortunate during my 4 months of treatment. But this weekend and today, the radiation is finally extracting it's justice. My tongue is super sore.  I, personally, believe it is because the tongue is rubbing on a tooth. For the time being, I using Oxycodone, but if it gets worse, I'll switch to the patch. I'm hoping it just heals as quickly as it did at the beginning of treatment. I'm just dealing with whatever each day brings. I going to wait to celebrate with a big, fat juicy steal when my taste buds come back. Thanks for everyone's support. Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Congratulations Sandy!!
Your post has such great energy!! I'm glad that you did great throughout. Radiation took its justice with my husband way before the 7th week...I'm glad it held out much longer for you. And, I hope your recovery goes as well as your treatment.
I still remember my husband's first "real" fat juicy steak. It was at Gibson's in Chicago. I can't wait to read about yours!!
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Congrats Sandy!
You are a champ and an inspiration!
You go on with your bad self!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Congrats Sandy. Man I was not up to posting by the time I finished so hats off to you. Won't be long before your side effects start to wear off and eat that steak as soon as you want, only get a very small one at first.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 | Sandy,
YEA YEA YEA! Congrats to my partner in rad. I am so glad to hear. One can feel the happiness in your email. Keep on posting and let me know how that steak taste.
SO happy for you!
Bill C.
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: Jun 2009 Posts: 24 Member | | Member
Joined: Jun 2009 Posts: 24 | YIPEE!!! You're over a big hurdle. Congratulations, Sandy!
Dana, Male, Age 52, DX 11/08
SCC right tonsil, Stage 3. RND, tonsilectomy, and PEG install done collectively 12/26/08, Cisplatin x3, IMRT x35. Post-TX PET clear 9/09, PEG removed 9/09, PEG stoma surgical repair 9/17/09. Dx renal cell carcinoma 11/09. Partial nephrectomy 01/10.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | More than likely you have a sore on the side of your tongue that is rubbing on a tooth. That happened to me and it hurt like hell. Look closely and you may see a white blister like looking thing on the side of your tongue. Other than "pink magic" or "magic mouthwash" there is not really much you can do about it except wait it out. Mine took a long time to heal as I recall.
Congratulations on finishing rads - let the healing begin!
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats Sandy. It seems you were a lot like I was during treatments. No problems but at the end they kinda snuck up on me . What the really bad part was were the rad seed implants in my tongue. It's been over 1 1/2 yrs since those things and it feels like yesterday. Heck, I just grin and bear it. I'm just gklad I have Delilah after dark to listen to while I am reading and posting in here.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Congratulations Sandy on finishing. One quibble, there is no "justice" with radiation, in fact the aftereffects are quite unjust. Your positive attitude throughout TX reminds me of the cancer survivors in the Psychology Today article I posted about in the survivor forum.
charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Sandy!! That is so AWESOME!!! Good for you...your happiness really comes through in your post. Man..that is just great. What will you have on your steak? Onions, mushrooms? Maybe blue cheese? Mmmmmm. Just so happy for you:)
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
