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#97834 06-21-2009 08:49 PM
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I haven't seen mention of "Fibersource HN" as a tube food. Is anyone else here using that? John's RO rx-d a whole bunch of it, but it seems to be lower calorie than some of the things I see mentioned here. It has 300cal per 250ml can and he can't very many down in a day b/c of nausea (sometimes worse, sometimes not so bad) even with the antinausea meds (Zofran, Reglan, Ativan). Is the high calorie Carnation useful in the tube, or only used for oral intake?


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
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I use Nutren 2.0 in my PEG tube. It's made by Nestle, like VHC, but has 500 calories per 250 ml can and is covered by Medicare. Apparently Medicare considers VHC to not be a tube food.

Nutren is also supposed to be drinkable, but when I previously used it I had to add Nestles Nesquick to it for flavor (Addl 60 calories, so that brought it up to VHC.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #98448 06-30-2009 01:31 PM
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We used ensure, calogen, and scandishake through the tube, and loads of water.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
Cecilia #98452 06-30-2009 01:34 PM
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Many like Carnation VHC.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #98753 07-04-2009 12:47 PM
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We've been using Jevity 1 cal which was prescribed by the VA. 237 cal per 8 oz can, 10 per day (totally on the tube) which has been perfectly balanced nutrition. When we were on vacation I shipped 80 cans on the plane but we started to run out so we bought some Ensure plus but the sugar content is so high that he started having reactions (whole nother issue)! I had asked our nutritionist about using the Carnation VHC but she said it was very thick consistency and may be difficult to put thru the tube.
I had also read (on another board) about an additive you can buy at GNC called 'Maxx Muscle' I think...they said you mix it with 2 glasses of milk and it's 900 cal and 50 gm of fat...not sure of the rest of the components.


Jeani, caregiver to husband Art, 61 Dx left BOT SCC 9/08 peg 12/29/08 35x rad and 3x Cisplatin ended 2/22/09 Left RND 7/6/09 took everything and 4 of 30 nodes involved
Jeani #98760 07-04-2009 02:23 PM
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My husband was very very thin before all of his treatments and lost 20 lbs that he has not been able to put back on yet. His tube feedings are 7 cans of Jevity 1.2 per day, but they are changing him to Jevity 1.5. He is adding cream cheese, sweetened condensed milk and peanut butter blended with his Jevity both for bulk as well as for added calories and fat. The nutrisionist I spoke to this week said to add some Olive oil also. She did say that the cream cheese probably was not enough calories for the bulk, but Chris said he likes it.


CG-Husb-Diag 03/08 T4N2cM0 Floor of Mouth SCC: 5/21-Mod Rad neck dissecton, remove mandible,floor of mouth, suprahyoid muscile, part of tongue. Bilateral +nodes. Reconstruct w/fibular (failed). 5/25-Pec flap: 6/15-infection from fistual: 7/31-Rads-6 wks. Chronic infections. HBO
starts 1-26-09
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Karen, that sounds like it might actually be tasty. Thats a great idea to add the cream cheese and peanut butter. It covers the taste and is smooth but at the same time will thicken it up. Great idea!!!!

Peanut butter is high calories. I add about 1/2 cup to my milkshakes. Im out of treatment about 22 months and still havent gained weight no matter what I eat. It seems to take forever to get back on yoru feet from this awful disease.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Karen, the GNC was 1850 calories and it is called Weight Gainer


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #98770 07-04-2009 04:27 PM
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There is also a Muscle Milk made buy cytosport. It is 300 calories per serving but is mainly for muscle gain. This you just mix 2 scopps of with cold water.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #98771 07-04-2009 04:32 PM
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I have one more for you. This one is calledQuick Gainer from Cort-Avert. There are 690 calories in a serving and 50 grams of High- Biological vsalue Premium protien per serving. It's an anti-cvatabolic mass complex. That should about cover it. geez, I actually made it without my normal typos.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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