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Porker!!

That's good, you most likely will need it or you could be one of those that won't loose any weight and end up morbidly obese post Tx but I won't go there. lol

Seriously though do try and get the answer to the water vs Gatorade question as I see them mutually exclusive and water intake will be important to your Tx and if it comes down to whether I drink water or Gatorade because it hurts to much to do both, you need to know.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Ha, Yea when my RO told me "eat up" I have definitely done that! I spoke to him today and he said water but when it gets tough to put down 8-10 glasses a day mix in the gatorade for the extra boost! I am hoping to be able to put down solid food at least to week 4. I dont know the exact amount of pain but I do know that it hurt like hell with my tongue surgery to eat and with my neck dissection but I managed. With my tongue it wasnt so much my throat even though everytime I swallowed my tongue would THROB since I had the surgery on the back side of it! I am almost envisioning it feeling like it does when you wake up from surgery after the breating tube has been shoved down your throat for 3 hours except that pain goes away in a day this is going to be ongoing for a month or so! Who knows! My RO told me that he has a 72 year old woman right now on her last week (7 weeks) and she hasnt missed a beat! Said she isnt really having any problems at all that she cant handle.....then on the other side he has a 46 year old that acted like this wasnt going to phase him and he was going to work the entire time he was having treatment......well you know how that story goes! He was in the office crying and whining after week 3 and by week 4 done working! Sooooooo we just wait and see! I have my 1st softball game Sept 20th so I better be good by then....lol!


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
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At best you will probably be the Bat Boy. lol

The problem we all seem to encounter is that in the early stages of the rad, we can swallow but shortly the food tastes bitter which takes away all the pleasure we derive from eating so it's not that we can't eat solid food, we just don't want to.

I try to tell people all the things that may happen so they won't be mentally caught off guard if they do. If they don't happen, then all is well either way. Granted some say they don't want to know anything but that's not me. By the time I finish with you, nothing will phase you and you will breeze right through it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Hey David, LOL then why can't I eat solid foods? I still take between 8 and 12 liters of water plus at least 6 coffees daily and try for 2 glasses of milk too.We are all different and my Drs say that I am the only one that tells them to go for whatever ut is they have to do. I get ask why I don't complain or comer in all teary eyed LOL I just ask if that would make them feel better? Nope. Not at all just remain the Jim with the good attitude.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Jim,

I stopped trying to figure you out after your 40th procedure!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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LOL...I think EZJ falls into a different percentile group than the 3 you listed. So does that mean the total on this board now equals 121%? (you know, I found that post so funny I can't seem to let it go...hope you know I am laughing with you not at you. :-))

Jim, what position do you play for your softball team. I've been reading a few posts of people who are having an easier time with RT than David is preparing you for...so have faith! Like your doc said, could go either way.

I think the older the patient, the more closely they listen to the docs...where the younger ones (my husband at 48 was considered to be in that group at the time) think they are invincible and then they are knocked on their asses unexpectedly midway through treatment. So, here's hoping you sail through like the 72 year old woman your doctor is treating. :-)

As David is helping you do...prepare for the worst...hope for the best. Every one has a different experience on this crazy treatment path.


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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Margaret. I'm 73 . Should I listen to them now?? LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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3 down 30 to go! Gotta say being strapped down with a gag in your mouth and the mask clipped to the table is extremely difficult for me! The 1st treatment I was like that for 30 mins I started to literally lose my mind! I need to take a damn valum before I go to my treatment. Everyone else have the mouth gag too?


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
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My RO ordered me to eat Hagan Daz every day because I lost so much weight. So much for low fat and sugar.

There is no such thing as a "damn Valium" - only "damn good Valium". I took Zanax when I was going through Tx.

It'll get easier I promise - at least the mask part anyway.

Last edited by Gary; 07-05-2009 11:11 AM.

Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #98864 07-06-2009 01:11 PM
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That's true about the mask part getting easier. My mom had such a problem with the mask the first time around. It was terrible. She just finished her radiation and chemo this time and went through it like a pro with the mask part.


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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