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#97592 06-18-2009 06:47 AM
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Ok so it is set I will be starting my radiation treatment on July 1st, got fitted for my mask and they gave me a box of cephasol with a script which I dropped off but of course nobody has in stock. From what I hear that stuff is very expensive and ulcerease works just as well about a quarter of the price? Anybody else experience that or hear that? I also picked up my fluoride trays and they cracked me $18 per tub of pro-den RX 1.1%......Not only is the torture to go thru you go broke as well!!! lol, anyways I have 33 treatments left neck and tongue. I have elected not to have the concurrent chemo and passed on the PEG tube also....I will keep you all informed on this journey of hell! Oh yea I will also be working thru the first 3 weeks....well attempting to anyways. My position (finance manager for a nissan dealership) requires 10 hr days and a TON of talking! Not to mention I dont know how well the Boss is going to like me not being able to shave for 3 weeks especially being italian....lol


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
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Good luck. It is a journey unlike any you've ever taken before, I can assure you that. Keep a good positive attitude and look at it as one day at a time and before you know, you'll be looking at your last six treatments as I am. I liked the part about being broke you made me laugh, SO true what with scripts, Dr co-pays, etc.
Well listen, keep posting on here, it surely helped me with what to expect and what to ask[tell] my medical team.
Good luck on going without a peg. Talk to you soon!


Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
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Speaking of shaving. I had all my whiskers fall out like little grains of black sand towards the latter stages of radiation. I didn't have to shave for weeks but slowly the whiskers above my chin line returned and heavier and darker at first and then they became normal. To this day I still don't have whiskers below my chin line and that remains THE ONLY positive side effect of radiation. You will also loose the hair on the back of your neck where the radiation blows out out but it will slowly return.

I see your new signature line...oh sure Moffitt gets credit for changing your mind after one visit telling you the same thing I beat into you over 20 different posts!! CPA Cancer Advisors just don't get any respect.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Jim, best of luck with your upcoming treatments. If you need some assistance with your prescription costs, contact the american cancer society. They may help you by setting up something with your pharmacy. They gave me $300 to help cover my prescriptions.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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So I went to walgreens today to pick up the Cephasol that my RO prescribed me yesterday and they gave me 4 bottles of Mouth Kote?? Charged me $53 with my INS card! I just went to www.dentist.com and found the same stuff on the website for $10 a bottle! Jackasses! Anyways has anyone used this stuff or used the Cephasol? Do you know what the difference is? I am going to call my RO tomorrow and find out if I should return this to walgreens! Thanks


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
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Posts: 2,219
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Jim,

Good luck and don't forget to give David a pat on the back or he may have to go for counseling.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Jim:
Good luck with your treatment. Please keep posting here as you progress. It really helps to boost your moral while you're going through this treatment.

Sandyst


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
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Jim,

Also look into Cypress SF 1.1% Sodium Fluoride Gel. It only costs me $8 for the same 2 oz tube and since you will probably be using these trays for the rest of your life, it will save you tons. I haven't looked online to see if I can get it cheaper yet.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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My sister will also be beginning radiation next week. how long does it take for these mouth sores to develop??


Sister, age 24, dx SCC 3/5/09, Stage IV T3N2M0, HPV-, 6x induction chemo (Cetuximab (Erbitux), Carboplastin, Taxol), 1/4 tongue removed and left modified radical neck dissection 5/14/09, started IMRT 7/7/09, 30tx, finished 8/14/09
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Courtney,
Mouth sores are also somewhat dependent on what chemotherapy protocol she will be getting (if at all). Cisplatin is notorius for mouth sores. Not so sure about Carboplatin or Taxol.

To answer your question it took me about 3 weeks before the mouth sores got started. They persisted for quite a while post Tx as well. It is also easy to confuse them with thrush wihich is another side effect of xerostomia (dry mouth).

There is nothing to "figure out" - Stage IV (T3N2M0), radiation IS needed. Please refer to the NCCN Oncology Practice Guidelines on the main pages of the site.


Last edited by Gary; 06-25-2009 08:53 AM.

Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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