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davidcpa #98183 06-26-2009 11:27 AM
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Chiming in with David, I lost over 60 lbs and my MO siad not to worry that in 2 years I would be fat again (I never really was fat). I lost so much weight I was actually able to fit in my wifes size "0" jeans. I put about 1/2 of it back on and am at the perfect BMI for my height. Everybodies story in unique, I think most have put all of the weight back on eventually and then some.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #99309 07-12-2009 04:30 PM
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Interesting discussion here, especially as regards maryjane. I've been nauseated more or less continually since about the 4th week of my 6 weeks of RT... and now it's 6 weeks post-treatment. I had no chemo.

I find that Zofran does little for me. I take a Prilosec capsule twice a day. I've weaned myself off the 14-16 Oxycodone I was gulping every day (after an equal number of Percocet, until my throat wouldn't tolerate their size), so it can't be the Oxy talking. Or gurgling I suppose. I also bought some ginger capsules, took half a gram/day or a gram/day based on some study results I read about online. Can't say they're much help.

I plan to ask my RO about medical pot when I see her this week. I'm sure she'll write me a scrip if she feels it will help, and here in Los Angeles it's easy enough to find.

I'd never heard of vaporization. What about a liquid form - anyone know about that? And what about Marinol, is that effective?

Wish I had more to offer the original poster about how to combat nausea! After 2 months straight with very little letup I'm about done with this!

David


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
David2 #99332 07-13-2009 05:43 AM
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Again I was one perhaps like you that nothing seemed to work for me in the nausea dept. I also was given a script for Marinol, like $20 a pill!!, and I thought back to my post college days and just knew this would increase my appetite and decrease my nausea and maybe give me a little buzz at the same time....NOT...What a total waste of money and time. They didn't do any of the above. See if you can get a script for 3 or 4 and try them. lol

As I have said before I finally just stopped taking all my meds and the nausea went away but left me with a gag reflex that stayed with me for a month or so at least.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
David2 #99335 07-13-2009 05:58 AM
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David 2

Just do a google search on "volcano vaporizer" to get info on using medical marijuana without smoking. In California you should have no problem. As usual DavidCPA has accurate advice, the Marinol pills are essentially worthless since they are not the highly complex organic mix of marijuana but just THC. It is highly hyped by the DEA in an effort to keep themselves in business with pot prohibition but I have never heard of any patient it helped. But I keep an open mind, so if you do get Marinol, let us know how it works. As I said, friends in California swear by their Volcano - both AIDS and Cancer patients as an effective nausea treatment. Not scientific proof, but then the DEA will not grant any licenses to do the studies to get scientific proof. Catch22
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #99360 07-13-2009 01:15 PM
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Thanks very much indeed, David and Charm. I'll certainly post results if I do go the MJ route, and I'll mention to my RO that based on my readings Marinol is ineffective. She of course may or may not have any experience with this stuff.... but she's very smart and also open-minded and doesn't seem to want to do anything but help.

We shall see!

D2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
ChristineB #99390 07-13-2009 05:40 PM
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My husband is having constant nausea. We have changed canned nutrition from Cal 2 to Nutren 2.0. I've watered down the food. He is now using a continuous feed machine at night. We thought it was the liquid Hydrocordone. He is taking Phenergan, Zofran, Transderm Scop patch, Xanax 25, Lomotil, Fentanyl 50, Protonix 40. Nothing seems to stop the constant nausea. He does vomit every once in a while, although at first he was vomiting a lot more. He doesn't want to take his food now, but that isn't going to help him feel any better. He can hardly swallow so there is no help there either. I am about ready to pull out my hair! Any ideas? The doctors haven't been much help so I am at my wit's end. Thanks, Pam


Diagnosed 05/09
PET clear 05/09 has not spread to lymph nodes
39 radiation scheduled, 8 completed
Cisplatin & Taxotere, 2 months scheduled, 1st & 2nd treatments finished
SCC Basaloid Features, BOT, T2M0N0 G3/3
jimorpam #99395 07-13-2009 06:30 PM
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Pam, slow down the pump to about 20. Make sure you use 1/2 can of extra water per can of formula. After your husband can tolerate this for a week then gradually move up the speed to 30, give it a few days then 40 and so on. After about 3 weeks you should be up to about 100. If he gets sick, back down the speed again. I had a terrible time with the formulas and had to be switched to 3 different ones.

Unfortunately, nasuea goes with the chemo/rad combos. Once it gets out of hand its already too late to catch it. Make sure he takes the anti nasuea meds even if he thinks he doesnt need them. I used Zofran and it worked as best as could be expected. Compazine gave me a bad reaction.

Hope things improve. Its a rough road but it cna be done.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #99431 07-14-2009 06:09 AM
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I am not advocating giving up meds without discussing this with your doctors but I was one that couldn't shake my constant nausea until I finally stopped taking all my meds. My docs were skeptical that my meds were my problem but it did stop my nausea and allowed me to keep food and water down and it made a big difference. Note that I did not have a Peg to fall back on so I had to swallow all my food and water.

I'm also not a pill expert but the list of meds your husband is taking seems excessive; perhaps overlapping or perhaps the wrong combination but that's just my uneducated opinion. Has he been seen by a Pain Management Team?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99446 07-14-2009 11:28 AM
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I never had nausea for one second but lost 70 lbs, 33


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #99447 07-14-2009 11:31 AM
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I wear a 33 waist now and am up to 170. Still 50 below the 220 I was at when this began. I'm going to try and top out at 174 which is what I waeighted at high school graduation just after I turned 17. Slim and sexy LOL now for some dang teeth.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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