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#97295 06-13-2009 05:49 PM
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boston Offline OP
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Hi:

My father has been in the hospital since late Thursday night. He cannot keep his food down (ensure). He has had all kinds of tests and everything comes back normal. He is getting Eurbix(sp) once a week and was recently put on the pain patch. Has anyone else experianced this? I feel so bad for him just sitting in his hospital bed. This treatment has been so awful. I feel terrible for all of victims of this horrible disease.

Boston


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
boston #97297 06-13-2009 06:30 PM
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Did your father have nausea before the new pain patch? Pain meds often cause nausea. That sucks.













































Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
Sweetpea #97298 06-13-2009 06:35 PM
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boston Offline OP
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not really. He has hated getting the food via peg tube from the start and always looked a bit uncomfortable when geting it, But, he now throws it right up. He has had all kinds of tests and the drs. cannot find any physical reason for his nausea. Does the pain patch do a job on your stomach? I know he is not in any pain but he looks out of it since getting the patch a few days ago.


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
boston #97310 06-13-2009 11:42 PM
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Hi Boston
when major pain meds are introduced some dotors automatically give an anti emetic alongside as they can cause problems.Rob was also given a stomach protector(omeprazole) to reduce the irritant effects on the stomach lining.Vomiting feeds back is also a common problem,and mostly seems to be resolved by juggling with feeding formula,timing and speed it is given with.Even something as daft as the wrong flavour can cause nausea .rob could only tolerate vanilla as the smell of the others made him wretch before i got them any where near his feeding tube.Getting nutrition right is a real minefield,and i hope it gets sorted.the first few days of fentanyl patch can cause a zonked out look,but as the body gets used to the drug this may pass,unless your dad is one of the unfortunate people who just cant toerated it.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #97319 06-14-2009 12:34 AM
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I'm on the fentanyl patch and it did cause nausea, they gave me 10mg of prochlorperazine and it helped a little. I found that if I only used one can of ensure and injected it slowly that most times I could keep some down.

to put things in perspective, fentanyl is stronger then most street heroin you can find, in fact a few years ago people were dying because they were getting fentanyl sold to them when they thought they were getting heroin and OD'd on the stuff. It's not a drug given lightly and certainly not one to play with. I hate being on it myself and look forward to the day I'm off. You do get used to it though, I haven't had nausea in 6 months so there is hope there.

Keep your chin up and good luck

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #97326 06-14-2009 04:29 AM
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Pain meds can cause nausea and dehydration and constipation can also cause nausea.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #97356 06-14-2009 06:15 PM
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amen for constipation and pain meds LOL Now that I understand


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #97425 06-15-2009 09:38 PM
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oh jim, don't get me started on constipation oy. When I was at the UWMC after my surgery they kept pumping me full of stool softners etc...after the 2nd day out of ICU I couldn't get off the toilet and the nurse was like "wow...I guess I shouldn't keep giving you these stool softners huh?" I wanted to throw the porta-potty at her.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #97494 06-16-2009 10:34 PM
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Not sure if I should start a new topic here or not, but the "constant nausea" subject line got my attention as my S.O. continues w/nausea even though he's 'only' undergoing rad tx, not chemo. He was actually sent home this afternoon after he thought he was going to vomit when the tx was just about to start--he was screwed down to the table and had had the positioning xrays done and everything. Was to go back tonight once he felt better but never did feel better. This means another tx tacked on the end, I suppose. Some days the nausea is much worse than others; today obviously a bad one and this despite Zofran, Ativan, Reglan (and maybe a Compazine too). Rather discouraging. It's 10:30pm here now and he's dozing in bed but still nauseated. Won't do the fluoride trays b/c afraid that might put him over the edge. Any others w/this much difficulty w/nausea during radiation?


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #97502 06-17-2009 03:28 AM
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Boston....if your father is throwing up after doing the feedings then you need to fix the feedings. Water them down and slow it down. I went thru heck with that for weeks, so Im very familiar with this.

Ask for a feeding pump and try doing the feeding s overnight while he sleeps. It should be set very low like about 30 or 40 to start. Add 3 cans of 'food' and about 1.5 cans of water to the bag. Make sure he is propped up on 2 or 3 pillows for bed. After a couple nights he will get the hang of the nightly feedings and will sleep very well with the sound of the pump. Then during the day he will only need 2 more cans.

By slowing down the feedings and watering it down it will be much easier for him to tolerdate. Of course he still should be drinking water as much as possible if able.

Also ask for a visiting nurse to come. I dont know how, but I had one check on me for a few weeks while I learned to use the feeding machine. They were assigned to me after a breif hospital stay for malnutrition and dehydration. It was due to not being able to keep down my feedings.

You should also ask the doc for prescription formula. Its much more potent than ensure and available thru prescription. Mine was paid for by my insurance company.

Best of luck with the continuing treatments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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