Previous Thread
Next Thread
Print Thread
Page 1 of 4 1 2 3 4
#96505 06-02-2009 09:39 AM
Joined: Apr 2009
Posts: 128
wfc Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2009
Posts: 128
Did a lot of you lose your voice? Mine is very weak and I have 18 more Rx treatments to go. If you did lose it, how long before it came back? If I can't talk, I can't work! Very frustated!

WFC


Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
wfc #96508 06-02-2009 09:47 AM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
Bill
My voice has gotten weak at times, but has always recovered. I've not lost my voice during chemo or radiaton.
Sandy


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

SandySt. #96511 06-02-2009 10:14 AM
Joined: Apr 2009
Posts: 128
wfc Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2009
Posts: 128
Mine is very horse and I am worried about losing it. I NEED to speak in order to continue to work and I am determined to work as long as I can. I feel that working is the only control I have over this monster, and I need to continue on.


Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
wfc #96527 06-02-2009 11:56 AM
Joined: Jun 2008
Posts: 148
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Jun 2008
Posts: 148
Absolutely did lose my voice at various times ( didn't last long though ). Was able to work and communicate like I am doing right now - on the keyboard. Treatments pay no attention to your NEEDS - whether it is eating, drinking, tasting or talking.


Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
William1949 #96547 06-02-2009 02:48 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I lost my voice right after my rad Tx's ended and I used a pad to write down my requests and a bell to call my wife when she was out of sight. I think it was only gone for less than a week for me. Other than the bell I think my wife enjoyed this phase of the Tx.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #96565 06-02-2009 06:26 PM
Joined: May 2007
Posts: 231
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: May 2007
Posts: 231
I lost mine for a few weeks but then it came back slowly.


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
billy.calcutt #96571 06-02-2009 07:23 PM
Joined: Jun 2007
Posts: 718
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 718
Dan lost his for several weeks. And, like everyone else his came back slowly. What kind of work do you do, wfc?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #96603 06-03-2009 04:36 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I didn't lose mine, but it was very weak and hoarse. This lasted a few weeks and then came back. I think trying to talk made it worse but some of us like me, just can't be quiet. LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
mhupe #96605 06-03-2009 04:49 AM
Joined: Apr 2009
Posts: 128
wfc Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2009
Posts: 128
I am a Labor Mediator. I attend negotiation sessions and try to bring the parties to a settlement without any labor unrest. I speak during every meeting so I am very worried that my days of work are slowly coming to an end for a while.


Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
wfc #96610 06-03-2009 05:42 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
wfc,

If you're like most of us you will be to weak and unable to concentrate in a few weeks to do anything like what you are used to.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Page 1 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5