#95628 05-17-2009 06:53 AM | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 | Is it "normal" to feel worse in the morning? After I wake up, my jaw and mouth hurt SO bad, but a little while later, after water,mouth, tongue and jaw exercise, it seems to be better.
Is this normal? If anyone knows what normal is that is!
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | It happens to Martin a lot. I don't know if it's they way he sleeps, but he gets jaw pain in the morning quite often.
As for the dry mouth it really depends wether he is having a dry week or not. I know his throat is always dry in the morning though.
Anyway, it doesn't seem to bother the doctors (then again nothing seems to bother them). If it's any consolation you Martin is the same.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Bill:
I seem to always feel worse in the morning. My mouth is very stiff, and I need to do my tongue and mouth exercies in the shower. I gues it's just the way it is!
Sandy
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 | Thanks! I was so sore this morning, I started to get a little worried.
Bill C
WFC
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Bill, I would still bring it up to the doctor. As a cancer patient, never overlook things even if they seem trivial.
I also had a very sore jaw for a long time, after doing HBO it didnt hurt anymore. No idea why it hurt or how it stopped, just glad it isnt sore anymore. Keep doing the stretching exercises so it doesnt tighten up on you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | That must be the norm, It happens to me and then in the evening the throat and tongue pain become worse again until I go for the magic mouth wash and perc. It doesn't quit hurting but feels better.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 104 | Your cancer sounds similar to my boyfriend's; he's going to start rad next week. You must be in your third week--are you experiencing a lot of irritation/sores/mouth and throat pain? He hasn't gotten a PEG tube yet; RO says he'll need one but everyone has an opinion and John wants to wait as long as possible so he can continue exercising, etc to keep strong.
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Hi Gretchen,
The sores and difficulty eating started on the 3rd week, and by the end of the 4th week he couldn't eat at all. He got thrush as well and his gums and tongue were covered in what looked like white moss. It went away with antibiotics.
Make sure John eats as much as he can while he can, and tell him not to wait too long if he has trouble swallowing and eating. He can still do stuff with a PEG (we moved house while he still had the PEG). It will just stop him loosing weight, and weight lost seems really hard to gain again.
Best wishes
Cecilia
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Hi,
About the sore jaw. Our chief consultant decided to send martin for an X-Ray particularly the left jaw bit underneath the ,olars where it hurts the most. he wants to check for infection or bone damage caused by radiation.
He called a collegue in to look at a patch in the mouth, but the other man said it was like a callous skin in the mouth were the food rubs, it's in a gap where a tooth is missing. Apparently nothing serius.
anyway, I'll update in what they say after the scan.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I had biopsies and was told it is scar tissue, Damn thing hurts more now than then. Just gotta go with the flow I guess
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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