#95883 05-22-2009 06:26 AM | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | All things considering not a bad week, sometimes the hardest part is knowing it will get tougher. No nausea but queasy stomah, taste buds just about gone and saliva is very salty and stringy.
RT seems to be going well. MD thought lymph nodes are not as swollen. Food in take starting to be a chore. Still plan on sailing race this weekend for the Huntsman Cancer Foundation. My son and greandson will be joining me.
I have a friend that is great and sends me a joke each day. It is amazing how little it takes to lift my spirits up.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hang in there Irish Mist!
I remember this phase- it is hard when the Docs tell you its going to be worse. I only had a bout 2 weeks total of bad days...it was at the end when they hit you with the higher doses or radiation and the cumulative effects start to kick in. I was exhausted beyond belief...then one day you turn the corner and begin to climb back to feeling like the old you.
I am so impressed that you are going sailing. Enjoy it! K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Carnation Instant Breakfast VHC
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Irish, hang in there. Your spirit and attitude is wonderful and will help you to get thru this. Sailing sounds like so much fun. Make sure you use heavy duty sun screen, its very very important for you right now. Radiation will do alot of damage to your skin, dont let the sun make it worse. Keep eating and drinking no matter how difficult it gets and stretch your mouth open widely several times per day. Best of luck next week. Looking forward to reading another good report from you of another week under your belt 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
