#95693 05-18-2009 04:08 PM | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | I am into the 2nd week, tomorrow is chemo day. A little queasy stomach at times, appetite gone but making myself eat. Disappointed that i BBQ'd chicken legs last week and could'nt really taste them.
Spent weekend sailing, something magical about being on the water, felt the best I have in weeks. This weekend we have a fubd raiser for the Huntsman Cancer Foundation which I am planning to single hand the race.
Tiredness has not been a problem but ear aches have been very strong. I guess the popping of ears driving over the mountains takes a toll.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Good for you for finding ways to enjoy yourself during treatment. Food will get less and less tasty, but you have the right attitude about making yourself eat.
Do you know how to update your signature line in your profile? It's helpful when people respond if they know what type of cancer you had and what type of treatment you are receiving.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Irishmist: Glad treatment is going easy for you! Sounds like you have a great attitude which will help a great deal you when things start to get tough. Good Luck this week!
Please update your signature.
Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Don't know what chemo you are on or the frequency (it helps us all if you do a Signature Line thing) but IF you are on Cisplatin and If you are getting the big 3 doses vs. the once a week regimen then be sure and mention your ear problems to your MO.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | Sorry about the signature line. I hope I updated correctly. Yesterday evening was not one of my better nights due to nausea. Compazine doesn't seem to do much but Lorazapan seems to work. I find need to stay on top of taking Advil for headaches and ear or the discomfort is hard to to relieve.
Last edited by irishmist; 05-19-2009 06:39 AM.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I haven't heard of to many people getting the weekly Cisplatin having a rough time from it but all of us can react differently. That's just part of the joy of our Tx!!
You still need to mention any problem to all of your doctors.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Watch your pain levels and make sure you let your doc know when advil doesnt work anymore. Dont let this get away from you. Alot of OC patients get fentanyl patches, they are easy and work very well. You put it on and change it every 3 days.
There are many very good anti nasuea meds out there. Some of them are very expensive, just outrageous at around $100 per pill. Thats also something you must stay on top of or it can sneak up on you and get out of control very quickly.
Best of luck with your treatments.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Irish, one thing for sure, the 1st taste of any food isn't bad, but forn the 2nd on, thay are like chewing a piece of cardboard,, tastless and makes you want to stop eating,. Hell, I can eat anything as it is, no teeth and lot of scra tissue they say. Go for it while you can.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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