#95512 05-15-2009 03:44 AM | Joined: Aug 2008 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 48 | Hi all, well it was 6 months ago, that I had last of chemo and rad. The list of problems keeps coming, My hearing is so bad I can not hear on phone or the tv. what I can hear, I have trouble understanding. My eyes are getting bad, I have had a rash since Nov. all over body. I now have a kidney problem, Most of the time I can't walk without falling. my feet go one way and body goes the other. When I found a small lump in mouth in July, I wasn't sick, now I'm falling apart and I have a ENT who tells me nothing but lies and I find out it's not that easy to get rid of a doctor. Being in a small town with little choice, they stick together and won't see you' they don't want to get involed. I'm seeing at least 6 doctors. If I drive the 45 miles to next town for new doc. It would cause proublems if I had more surgery, because doctors don't want long distant. I'm the outdoor type, tent camping in mountains, dirt bikes, lots of hiking, now at the age of 67, I can't walk to the bathroom at times. The latest doctor added potassium,vitamin B12 shots and folic acid. He said it would help my walking and help.
sorry I only come in when I have trouble, but I don't know enough to be of any real help. I do read your post and say a pray. take care.
cancer surgery on July 7th. 2008, I'm now a survivor. cancer free for now. 39 radiation, and 8 chemo treatments.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Ruby, Ive wondered how you have been. There are so many after effects of chemo and radiation. Just give it time and some of these will subside. The hearing and kidney problems are serious. Its worth it to go to another doctors even if it means going far away. Hope your day is a good one today.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I agree with Christine, as usual, go see another Dr especially about your kidneys. This can ger serious very fast. The ears might let up after more time. My ears still hurt and my balance is terrible at times. Rads and chemo problem I think.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Hi RubyAnn,
Martin got fainting spells a lot and even fainted and cracked 2 ribs, (i was at work and he just managed tcrawl to the bedroom, grab the phone and call me as I am first on his mobie list).
The doctors said he had a low red cell count and high blood pressure. He now takes Feroglogin which you can get health shops here, and he seems to be much better, his last blood count was ok. Maybe you can ask them to check your blood?
Feroglobin has vitamin b12 and Iron, it's in liquid form so gets absorbed quicker.
As for the walking, Martin takes cod liver oil, to help with joint pain, but I think his legs are flobbly because he is rusty. The more little walks he does the better they get. I think he needs to get strength back in his legs.
The rest, I can't help with but you really need to get someone to give you some answers. Difficult I know (doctors can be very dismissive) but try.
All the best.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had Cisplatin and I also can not hear cell phone rings on TV. I also have a hard time with women's voices and soft voices.
Now you are also ONLY 6 months post Tx and my recover took all of 2 years so don't think you are anywhere close to finishing your recovery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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