#95073 05-07-2009 07:50 PM | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Mar 2009 Posts: 109 | Is it normal? I don't think it hurts, just looks like the top layer of skin is well-cooked and is starting to peel off at the front of the tongue. Anyone else? Will it all come off in one piece?
There seems to be no end to how much more gross I'm going to get. But as long as it's normal...
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I had some of my first flap come off, but with my second flap, it was actually dying (from lack of good circulation in the leg tissue) -- I couldn't smell it, but the nurses did. Might have someone do the smell test.
They removed the dead/dying tissue with the silver nitrate cauterizing sticks, which didn't hurt because the nerves weren't connected.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Mar 2009 Posts: 109 | I asked the RO on Mon, he just waved it off. But your reply, Pete, made me really worried. I'm seeing RO's NP on Monday, and she has much better communications skills than the RO, so hopefully she'll listen to me.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Didn't want to worry you -- It's likely the natural skin change, but better to be safe.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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