#94968 05-05-2009 08:51 PM | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I found a new ENT Dr about 3 weeks ago and he seen a small sore on the side of my tongue. It keep getting bigger and I went in to see him today. He did a biopsy on it today and I will should find out Thursday if it is cancer or not. I do not know what I would do if it is cancer again hitting. This time I am very scared about. Then he took my 1st test from 2007 and had it sent to the MAYO clinic to have it test for HPV. He was not happy that my 1st ENT did not have it done.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Up until now there are no documented HPV+ cancers that have been located on the movable part of the tongue. Theses types of tumors have been located in the oropharyngeal area which includes the back of the throat, the tonsil area and the base of the tongue (BOT). I wish you good luck with the results of your latest biopsy and pray that it is not cancer. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | You will be in my prayers and have all my hopes going your way too. That has to be tough to sit and wait for test results. God luck and lets hope the sun will be shing your way.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I was just thinking today and today 2 years ago I found out that I had oral cancer. Now today I am still waiting for my results. 1st they told me to call Thursday after noon, then was told call back Friday and now call on Monday.
What scary again is that this sore has grown some since the biopsy was done. I know if is back I can fight again and survive the fight.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Yeah the waiting is definitely one of the sucky parts of this ordeal and I don't see that ever getting better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Just wondering if you have your results back yet? Been praying for you.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Ivredrock,, I think you are a lot like me,, what ever it is I am going to beat it and live to be at least 100.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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